The 3 Amigos, song they wrote, while living in Brigham & Women’s Hospital waiting for their heart transplant


I would like to introduce you to 3 amazing people, Lauren and I had the pleasure to meet when we were in the hospital.  Joe is a music teacher here in the Springfield area, so when we met them they were all in Katie’s hospital room writing the most beautiful song.  It is about living in the hospital on  VAD machines.  Joe had his guitar, and Katie and Steve were helping in writing the lyrics.

This song was special to us also, Lauren was living with a VAD for 6 months.

Joe Whalen, Katy Flynn, Steve Disumma

IMG_1067 vad picture

This picture was taken after all three had their heart transplants.

The smiles, say it all.  Love you guys…and miss you

3 amigossecond vad picute

Enjoy the song, just a heads up we used to call Brigham & Women’s Hospital the Cardiac Hotel.

Love Lynne

The BI-VAD-LVAD TAH BLUES SONG

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Lynne

calling all bikers, Muscular Dystrophy motorcycle ride


Aside from undergoing a heart transplant, Lauren also has an extremely rare form of muscular dystrophy which contributes to the rest of her weaknesses. Come spend the day hanging with great people, riding through the countryside, listening to awesome music and of course, supporting a great cause!

On Two Wheels: Charlie Daniels Band headlines Muscular Dystrophy Association motorcycle ride

ON TWO WHEELS
On Two Wheels: Charlie Daniels Band headlines Muscular Dystrophy Association motorcycle ride

If on July 12 you are in the mood to go for a nice motorcycle ride with a thousand or so of your friends, help contribute to a very worthy charity, have a chicken dinner and, lastly, see one of the best Southern-rock bands in history, then the 2015 Muscular Dystrophy Association Ride will take care of all of these things in one fell swoop.

Sponsored by the good folks at Trantolo & Trantolo, Norm LeBlanc and his team have put together one of the most terrific ride packages of the year. It’s not to be missed.
The ride staging and registration will begin at 9 a.m. and continue through 11:30 at co-sponsor TSI Harley-Davidson on Route 83 in Ellington, Connecticut. Breakfast will be available as well.

There will then be a 40-mile, police-escorted ride through the Connecticut countryside that will wind up at the Sun Valley Resort in Stafford Springs.

Riders will then be treated to a home-style barbecue lunch of grilled chicken, sausage, peppers, and onions, homemade pasta and potato salad. Refreshments will also be available; beer and wine will be on sale.

The Arizona Maid Band will be taking the stage at noon, followed by Kim Logan at 1 p.m., and, at 2, the legendary Charlie Daniels Band will hit the stage.

Charlie Daniels originally rode in on the same wave of Southern rock that brought us such bands as the Allman Brothers, Marshall Tucker, the Outlaws and Lynyrd Skynrd. The Charlie Daniels Band has had numerous hits over the years, and Charlie Daniels himself has become well known and outspoken in regards to his love of country, patriotism, and the ideals that make this country great. Ever the showman, you will never walk away from a Charlie Daniels Band show unfulfilled.

The event will cost you $40 per rider if you buy in advance; it’s $50 on the day of the show. Tickets for couples are $60 in advance, or $75 on the day of the event. The same prices apply if you are just attending the meal and show. If you purchase your tickets in advance you will be eligible to win a $1,000 gift card from TSI Harley-Davidson.
You can purchase tickets on line by logging on to mdaridect.com or swing by TSI Harley-Davidson to pick them up in person. This will be a very large event with probably over 1,000 motorcycles so be prepared to ride accordingly.

The Massachusetts motorcycle community was dealt a blow recently with the passing of Eugene “Griz” Griswold, of Palmer. Known simply as “Griz” or “Santa Griz,” Griswold was a longtime biker who fought for motorcyclists’ rights as both chairman and district representative for the Massachusetts Motorcycle Association, going all the way back when it started as the Modified Motorcycle Association.

griz.jpg
Eugene “Griz” Griswold, of Palmer, a longtime biker who fought for motorcyclists’ rights as both chairman and district representative for the Massachusetts Motorcycle Association, died on June 11. He is shown here in one of his favorite roles, filling in for Santa Claus as a member of one of his motorcycle clubs to bring joy to children at the Gray House in Springfield.
DAVID MOLNAR / THE REPUBLICAN

For many years, Griz was a salesman for Tibby’s Harley-Davidson and was a proud and patriotic veteran of the U.S. Navy. Bearing a striking resemblance to Santa Claus with his large frame and flowing white beard, this gentle giant of a man reveled in entertaining thousands of children (as well as adults) at Christmas time and as a member of the Weasels USA motorcycle group was the only one to carry the distinct North Pole back patch. Griz was also an ordained minister who presided over many area weddings. God speed, Griz, you are loved by many and will be sorely missed.
Goings On: Throttle Rocker Magazine will begin its Destination Bike Night series on July 2. These will be an every other Thursday bike night to be held at a different Destination. The first will be at Indian Motorcycle of Springfield located at 962 Southampton Road in Westfield. These will run from 6 to 9 p.m., and there will be vendors, music, food and more. For a complete schedule of Destination Bike Night, log on to throttlerockermagazine.com.

On July 11, it will be the Honor and Remember Bike Run, Concert and Barbecue in memory of Lance Cpl. Phillip M. Bushong. This event will be held at the Southwick Veterans of Foreign Wars Post 872 at 151 Point Grove Road. Registration begins at 9 a.m., and kickstands will be up at 11. The cost is $20 for riders; passengers and walk-ins are $15. There will be live music, a barbecue and raffles. Featured bands will be Point Black, Legion, the Remones and Redhead. The music starts at 2 p.m. with a flag presentation at 3. For information and reserved ticket information call (413) 355-8031.

Until next time, ride safe and ride smart.

Hope for Cain Please read and pass on


When we were living in Boston, we met so many wonderful people who wanted to help Lauren with her fundraisers.  One lady in particular, her name is Pam.  She was a manager of a restaurant that helped sell the purple bands.  All of her employees always made me and my family feel like family when we went there.

Now we need to pay it forward

This is a story of a little boy who lives in Ireland.  Pam is from Ireland also, so it is close to her heart.

Cian lives in my county in Ireland and he really needs a double lung transplant that can be done in Boston Children’s but it’s costing a lot of money!!! They have started a crackin for Cian, something similar to the ice bucket challenge but it’s crackin an egg over your head! People are asked to nominate friends and donate to his webpage with is

http://www.hopeforcian.com.

Please, please pass this along, together maybe we can help this adorable little boy who deserves to have a chance at life make it happen.

Much Love Lynne

Wisdom Teeth are Gone, all is GOOD


This is how Lauren has dental work done now

20150624_113735laauren

Follow up on removal of wisdom teeth

Yesterday we arrived at the hospital at 12:00 p.m., it was a long morning just wondering about this procedure.  When we arrived I really didn’t know what to expect.  Was this going to be in a dental setting like an office within the hospital, that was what I was thinking.  WRONG.

When we found the area we were to be, it was the surgical unit.  OMG, memories.  They brought us to the pre-surgical area.  We knew the drill.  Lauren had to change into the lovely hospital gown, IV was administered, then we had to go over Lauren’s medical history.  Being a new hospital, this took quite awhile.  Procedures she had done, then the med list.

We were told this was their first heart transplant patient they had. ( Made me a little nervous).At one point Lauren was like a show a tell.  Nurses came up to Lauren to ask if they could see the scar from the surgery.  Lauren was a trooper, but I could see she was a tad bit annoyed.

When the surgeon and the anesthesiologist came to talk with us about the procedure, we had to go over Lauren’s history with them.  They were being very cautious about how they could put her to sleep safely.  I had to tell them how certain medications if administered could possibly suppress her breathing which could lead to being on BYPAP.

They left and we could hear them discussing what they should do.  Then they had to look up Lauren’s muscle disease, they never heard of it.  I started to think maybe we should be in Boston, they know everything about Lauren.  But, I really felt they were going to take great precautions to make sure Lauren was safe.  When they returned with their plan, it was something I never expected.  They were going to put a breathing tube in and give her Fentanyl.  Tears started to build.  Breathing tube, breathing tube really.  Lauren was so nervous all she kept saying was I better not wake up with a trac.  They told us this was the safest way to do the surgery.  In the back of my mind, I kept saying to myself, she is just getting teeth extracted.  Could this turn into a life threatening procedure?

After a long discussion, we agreed to go forward.  Lauren was in God’s hands again.  They took her in around 2:00 and told me they would come out to talk with me when it was over.  I was told about 1 hour.  The Dr. finally came out to talk with me around 4:00.  I was so nervous because it to longer than they said.

EVERYTHING WENT GREAT, LAUREN IS IN RECOVERY.

Lauren was discharge and we were home around 5:30.

Lauren’s mouth is sore, but she was able to eat all the ice cream she wanted.

Lynne

Are you an organ donor??????


Going to the hospital today…….


Lauren is having 3 wisdom teeth removed today.

Lauren needed these teeth removed 2 years ago, but when it was scheduled that was when we received the call for her new heart.  It has been a long process to schedule the extractions.  First we had to get the approval from the transplant team in Boston, then after that when we went to the oral surgeon, with Lauren’s history of anesthesia, he was very hesitant to perform the surgery in his office.  So it was decided, in Lauren’s case the removals will be  preformed in a hospital setting to be on the safe side.

So we are off to Mercy Hospital this morning.  I am so happy we do not have to go to Boston for this.  Last night I had a hard time sleeping, anxiety about going into a hospital setting again.  I just keep telling myself, nothing is going to go wrong and we will be home later today.  Positive thinking.

This is the last surgical procedure Lauren needs.

Lynne

Picking out your wedding song


Yesterday we went with Mikey and Katie to Crest View Country Club to sign the contract for their wedding.  I asked them if they had a wedding song picked out yet.  They responded, “not yet, it is so hard, so many beautiful songs out there”.

When Dean and I got married, this song just came out and it gave us chills listening to it.  I guess we had it easy.  It was a no brainer.

If you could comment back, I would love to hear what songs my readers selected.   Thanks Lynne   P.S. who doesn’t like Tim Mcgraw.

A heart may keep you alive, but it also holds so much love


My mom, myself, my sisters Laureen and Donna

DSCN2921

When I look at this picture,  I keep thinking is it a rare time when we can be together.  It is hard, I live in Mass., my mother and sister Laureen lives in Florida and my sister Donna lives in Virginia.

When we do have the opportunity to come together, there are so many emotions we feel.  We do not have the privilege to see each other when we want.  I cannot just take a ride over to their house’s for coffee or celebrate birthday’s & holiday’s.  Our children are almost around the same age, so when they were young we tried as much as we could to be together, but that meant a trip.  We all felt it was important that the cousins knew each other and were able to grow a bond together.

As we grew older, you can say we are all set in our ways,  (we all think we are right) so when we do come together all our emotions come out. We know we have only short time together, so I really believe we want to, let me put it this way voice our comments being good or bad to each other.  We laugh, we cry, we argue but in the end we love each other with all our hearts.  We do have each others back no matter what.  My husband thinks at times we are crazy, but he doesn’t realize how hard it is to not have your family close by.  His family lives right here in Chicopee, so if he wants to spend time with his dad, he can.

Everyone know that saying:

You Hold A Special Place In My Heart

A heart is a magical organ, without it, life is done.  It is the vital organ that keeps us all alive.  A broken heart has many meaning, first it means health problems.  Second it could mean love problems.

Love problems could be fixed with time and moving forward, but when someone has heart health problems, that is when we need people to go forward to be able to help.  Hate to say it again, but organ donation could be the only answer for thousands of people.

If you live close to your family you are blessed, if not cherish every moment you have together.

Lynne

organ donation


Image result for organ donationwvxu.org
Organ donation is the process of giving an organ or a part of an organ for the purpose of transplantation into another person. In order for a person to become an organ donor, blood and oxygen must flow through the organs until the time of recovery to ensure viability.
Organ Donation | Donate Life America
donatelife.net/organ-donation/Donate Life America