Update on Lauren 7-3-17


          Where to start ????   First thing we would like to thank everyone for all the prayers and positive thoughts sent to Lauren.  To be honest, it is a miracle Lauren is here with us.  I cannot sugar coat this one.  Lauren was not expected to survive.  Her heart went into failure for no reason.  If we didn’t get her to Boston as fast as we did, I would not be writing this.  I cannot thank the emt’s that drove us here. OMG, the driver’s name I remember was Chris.  When we arrived here in Boston I remember saying to him “that was some bad ass driving”.  Lauren wants to source out who the emt’s were that got her to Boston and then thank them personally.

      Lauren was on a machine called ecmo that saved her life.

ECMO stands for Extracorporeal Membrane Oxygenation. Extracorporeal means outside of the body. A membrane oxygenator is a piece of equipment which acts as a lung to deliver oxygen into the  blood. The ECMO circuit acts as an artificial heart and lung for the patient during ECMO therapy.

A person cannot be on this machine for long. A week or two only.  It is very risky to be placed on the ECMO, it has many side affects, bad ones…..but we had not choice in it.  If you are on the ECMO machine, chance of survival is very low.  When Lauren’s dr.’s would come in and say to Dean and I “I am so sorry”, I would remain in disbelief, this is not happening.

We contacted the family and everyone flew or drive in.  Our son Matt who is in the Army stationed in Arizona, my husband contacted the Red Cross to help with his leave. He was here the next day.   At one point Lauren was awake the dr. was explaining to Lauren what was going on, Lauren looked at him and said “Am I going to die?” dr. Neil just looked at Lauren and said “I don’t know we are doing everything to not make that happen”.  I just in and said “of course not, you are going to get stronger and we are walking out of this hospital together again”.  My son Mikey and his family would drive every day to Boston.  The rest of my family camped out in the family room on couches.

At this time right now, it all seems like a blur to me.  I remember sitting by myself and in my head I was planning Lauren’s, well I can’t say it but, you know what I mean.

That’s in the past now, we are out of ICU and Lauren is getting stronger and stronger.  The dr’s. are calling her a miracle.  Lauren started to get better as fast as she became sick.  I believe it is the power of prayer it worked.  They are still at some point scratching their heads as to what happened.  With that said………………….

Today we are starting to make plans of going to a rehab facility.  Lauren has had so many different rejection meds that they help her heart but weaken her muscles.  So she needs to start all over again.  Right now Lauren is learning how to stand.  That is how weak she is now.  We have requested an acute rehabilitation facility close to home.  I will know more later on in the day.

From our family, we cannot thank everyone enough for all the love, support and prayers.  Also to our wonderful neighbors who have been helping in taking care of our crazy Kooper, yard and pool.  Thank you we love you guys very much.

God Bless

Lynne, Dean & Lauren

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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Meet Terri Wentzell


It is my pleasure to introduce Terri Wentzell.  Terri is my daughter Lauren’s guardian angel, a nurse at Brigham and Women’s Hospital in Boston Ma. Terri worked in the ICU when my daughter had her heart transplant. Terri’s fast actions saved my daughter’s life. For the rest of my life I will always be grateful to Terri Wentzell. After that happened I saw a person, not a professional nurse, but a person break down when she thought it was private. Nurses are people. They feel, they have emotions, they have only so much strength. It hit Terri hard, when she realized what had just happened and she saved my daughter. I have nothing but the utmost respect for nurses. Terri wrote this book for nurses. I am proud to say I know this wonderful women. Please pass this post around, so many nurses out there would love to receive or buy this book.

 Terri Wentzel
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“My book is ready!!! Nurses, . I KNOW how hard you work. I KNOW the struggles of feeling like you’re always caring for others and have nothing left for yourself. This book is me giving you not only permission to care for yourself, but practical application, motivation, encouragement and real solutions for allowing you to live your best life. Go to nursegonestrong.com and order your copy from my Home page (order from a desktop computer for best results rather than a mobile device!). YOU ROCK NURSES!!!! 🙂 Not a nurse? Pick up a copy for the nurse in your family or circle of friends  Or if you are just new to trying to live healthy yourself, you will find real, no-nonsense solutions and practical advice in this book.  God Bless!”

Please share this post

Lynne    1437940979_love_valentines_day_11

 

 

 

 

 

 

 

Finished Writing My Book


Yes, I finally finished writing my book.  Now to start a new venture…..

GET PUBLISHED

          It’s our story about Lauren’s heart transplant.  Finding out my daughter was very sick, to being listed on the transplant list and living in the hospital for almost one and a half years.  The highs and the lows we endured during that time.  It’s my  journal I kept.  Now I am ready to share with everyone.  So many people are living that life now, I hope my book will help them know they are not alone.

 This is the perfect month for me to get the publishing started.

April is National Donate Life Month

 

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  We have our flag proudly flying in the front of our house to help bring Organ Donation Awareness.

 

To become an organ donor, click on the link below, or to learn more on this subject.

                         donatelife.net

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Pass this on, let’s try to inform everyone

the importance of organ donation.

                                                       Love Lynne

Love being a non smoker


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 This was the way I have always felt.  I was chained to my addiction of smoking cigarettes. No matter where I went it was always with me.  

NOT ANY MORE

I am not going to say how many years I have smoked, (just out of embarrassment) but to  many, way to many.  I have quit a couple of times before only to find a reason to start-up again.  I had some good reasons, but that shouldn’t have been an excuse.  I tried to justify a situation to make me believe I was entitled to have that cigarette.

I am going on 5 months of being a non smoker..  Yay for me.

How did I do it?   I decided enough was enough.  In my life I needed to make some changes and smoking was on the top of my list.  I was ready again.

So I set a quit date.  Gave myself time to put myself in the proper mind-set, that I was going to do this.  Did some research and decided to get help with the Patch.  Then I thought of all the positives:

  • save my life
  • save money, buying the cigarettes, plus on health insurance (smokers pay more)
  • save on embarrassment – all smokers can relate, finding a place to smoke, people walk by you and give the look of disgust, you smell,
  • no more smokers cough, you know that one every time you laugh you can’t help but have the course cough that always follows
  • you don’t have to worry about when you can have your next cigarette.  I found the hardest is when traveling.  Going to someones house that doesn’t smoke.
  • Having to step outside in all-weather conditions, just to get that fix.
  • Become an individual, be your own person.  Don’t smoke because others are doing it.

There are so so many of them, we all have our personal reasons and those are just some of mine.

Since I quit smoking my family thinks it is so funny when I complain about cigarette smoke.  Their answer is “now you know how we felt”.  My answer is “omg, I do now”.  I cannot stand the smell of cigarette smoke right now.  I can smell just the slightest bit of smoke.  I am not going to say that I haven’t had any craving for it.  I did.  But I kept thinking about why I didn’t want to smoke and, it got me through it.  Trust me it is not easy.  I had a situation happen in my life, not a pleasant one and I decided I did not want to be like that.  Smoking was one reason I thought of that would make me different.  So when I feel like lighting up, my mind goes to a certain thought and I take control again.  I have asked a friend one time  when she was smoking if I could have a drag?  She said “absolutely NO”.  I told her I just want to see if I miss it.  She caved and handed me her cigarette, I took a puff and handed it back to her and said ” no, not missing anything”.  I was so happy, I got it out  my system to want a cigarette.  So as the day went on then turned to months now, I can say I am proud of myself.  I really didn’t do it for anyone but myself.  That’s what made the difference this time, plus with the help of the patch.  I only took it for three weeks.

My family has told me they are proud of me.  I have told them sorry it took so long.  But I needed to make this happen for me and me alone.

5 month as a non smoker and counting.

If you smoke and have always said, “ya, I will quit one day”, make that day happen.  Trust me I will never put down anyone that smokes, that’s your choice in life, but what I am saying if you want to quit maybe think about yourself instead of the people who are on your back about it.  Hell, it worked for me.  And trust me, I never thought I would never ever quit.   Surprised me.

I am confident that I will never be a smoker again in my life.

Love

smokeless in  Chicopee Massachusetts       Lynne

January 20th is right around the corner


This is only my thoughts on our president.

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On January 20th, the United States of America with have a new President,  Mr. Donald Trump.

Is it time for a change, absolutely.  Our country is in so much trouble.  It is so separated like never before.  We are all americans.  Is it because of this one man, Mr. Obama, no but I believe it was his leadership that had people believing in what is not doable.

In America we have an election to vote for our president.  Well, we had the election and America spoke we voted for Mr. Donald Trump as our president.  Mr Obama had eight years.  People like change, new set of eyes lets just say.

As an american, I voted as did everyone that wanted a say in the vote.  When I hear people, OK celebrities say they are going to move to Canada because they do not like the way the election came out, I am embarrassed.  Because they did not get their way……  Ok america, do you agree with me when I say the salaries they are payed is so outrageous, a regular american will never see that kind of money in their lives it’s ridicules.  They should be blessed, they live in america.  Land of the free, land of the american dream.

As a american we need to stand beside out president elect, even if this is not the person you voted for.  The election is over, our President of the United States of America is President Donald Trump.  

          IT’S TIME OUR COUNTRY COMES TOGETHER

      Our country is in so much trouble, as the quote states:

“LET MAKE AMERICA GREAT AGAIN”

Let’s all come together, it shouldn’t matter if you are a republican or demarcate, black or white or any other nationality, we are all americans. Time we start to act like that.

I would like everyone who reads this to pass it along please, lets all come together again.

After you read this please hit the like button on the bottom, even if you don’t like what I wrote.  This is a way I can see how many people really read my article.  

Thank you very much, just felt like I needed to get this out there.

Lynne Robitaille

Organ Donation Advocate