What’s up with Oral Surgeons ????

When you have a bad tooth ache or are in pain from your wisdom teeth, you are recommended to see an Oral Surgeon.  You say OK.  Now you call the office, you’re in pain (nothing is more painful than a tooth ache) and they say to you “the dr. can see you in 3 weeks for a consult first”.  Your first thought is “are you kidding me, 3 weeks!!!!!”


Now the search continues, you call other offices and they say the same thing.  I get it, they are busy, but how is a person to live and go on with their daily lives with that kind of pain.  Impossible.

A good friend of Lauren’s is going though that right now.  We can relate to her, because when Lauren was having pain with her wisdom teeth, she had to wait almost a month before they would see her.  Even with her transplant team from Boston calling, nothing sooner.

In this day and time, when a person needs medical care, especially for mouth pain, it should be addressed. Any comments on this subject ?????????



blogging 101, love it

I have been writing a blog for well over 2 years.  First one I started was about when my daughter was going through her heart transplant journey.  Just writing daily helped me to communicate with family and friends, also it helped me get my feeling out.  Many times I was crying as I was typing, but I always felt like I someone to talk to when ever I needed it.

Now I needed to start a new one about life after a heart transplant.  Everyday there are worries and concerns, but so, so grateful we are home.  Trying to get Lauren’s life back on track is difficult.  This girl has been through so much.  Physically and emotionally.  At times I feel our world is revolved around Lauren’s medication.  Constantly asking her did you take am, afternoon, midafternoon then evening pills.

I have connected with a couple of organizations that have help, with others that have gone through and are still waiting living in the hospital.  It helps a lot.

I have just joined blogging 101.  Now I feel I have a great support on how to connect with more writers who want to express different topics.  Plus I am getting tips on computers.  So much to learn.


Update on Lauren’s letter to her donor.

We have been asked numerous times if we have heard from the donor family.  Well, to this date we haven’t.  We received a letter from UNOS stating that they received Lauren’s letter.  They said it was beautifully written and they sent it to the family.  Now it is up to the family if they wish to be known.

Lauren and I realize it is probably a very hard decision for them, and we understand it may take them awhile to want to reach out or not.If they don’t, we will respect their decision.

Take a second a listen to this song, when we listen to it, it is for a wonderful person who decided to be an organ donor that saved Lauren’s life.


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calling all bikers, Muscular Dystrophy motorcycle ride

Aside from undergoing a heart transplant, Lauren also has an extremely rare form of muscular dystrophy which contributes to the rest of her weaknesses. Come spend the day hanging with great people, riding through the countryside, listening to awesome music and of course, supporting a great cause!

On Two Wheels: Charlie Daniels Band headlines Muscular Dystrophy Association motorcycle ride

On Two Wheels: Charlie Daniels Band headlines Muscular Dystrophy Association motorcycle ride

If on July 12 you are in the mood to go for a nice motorcycle ride with a thousand or so of your friends, help contribute to a very worthy charity, have a chicken dinner and, lastly, see one of the best Southern-rock bands in history, then the 2015 Muscular Dystrophy Association Ride will take care of all of these things in one fell swoop.

Sponsored by the good folks at Trantolo & Trantolo, Norm LeBlanc and his team have put together one of the most terrific ride packages of the year. It’s not to be missed.
The ride staging and registration will begin at 9 a.m. and continue through 11:30 at co-sponsor TSI Harley-Davidson on Route 83 in Ellington, Connecticut. Breakfast will be available as well.

There will then be a 40-mile, police-escorted ride through the Connecticut countryside that will wind up at the Sun Valley Resort in Stafford Springs.

Riders will then be treated to a home-style barbecue lunch of grilled chicken, sausage, peppers, and onions, homemade pasta and potato salad. Refreshments will also be available; beer and wine will be on sale.

The Arizona Maid Band will be taking the stage at noon, followed by Kim Logan at 1 p.m., and, at 2, the legendary Charlie Daniels Band will hit the stage.

Charlie Daniels originally rode in on the same wave of Southern rock that brought us such bands as the Allman Brothers, Marshall Tucker, the Outlaws and Lynyrd Skynrd. The Charlie Daniels Band has had numerous hits over the years, and Charlie Daniels himself has become well known and outspoken in regards to his love of country, patriotism, and the ideals that make this country great. Ever the showman, you will never walk away from a Charlie Daniels Band show unfulfilled.

The event will cost you $40 per rider if you buy in advance; it’s $50 on the day of the show. Tickets for couples are $60 in advance, or $75 on the day of the event. The same prices apply if you are just attending the meal and show. If you purchase your tickets in advance you will be eligible to win a $1,000 gift card from TSI Harley-Davidson.
You can purchase tickets on line by logging on to mdaridect.com or swing by TSI Harley-Davidson to pick them up in person. This will be a very large event with probably over 1,000 motorcycles so be prepared to ride accordingly.

The Massachusetts motorcycle community was dealt a blow recently with the passing of Eugene “Griz” Griswold, of Palmer. Known simply as “Griz” or “Santa Griz,” Griswold was a longtime biker who fought for motorcyclists’ rights as both chairman and district representative for the Massachusetts Motorcycle Association, going all the way back when it started as the Modified Motorcycle Association.

Eugene “Griz” Griswold, of Palmer, a longtime biker who fought for motorcyclists’ rights as both chairman and district representative for the Massachusetts Motorcycle Association, died on June 11. He is shown here in one of his favorite roles, filling in for Santa Claus as a member of one of his motorcycle clubs to bring joy to children at the Gray House in Springfield.

For many years, Griz was a salesman for Tibby’s Harley-Davidson and was a proud and patriotic veteran of the U.S. Navy. Bearing a striking resemblance to Santa Claus with his large frame and flowing white beard, this gentle giant of a man reveled in entertaining thousands of children (as well as adults) at Christmas time and as a member of the Weasels USA motorcycle group was the only one to carry the distinct North Pole back patch. Griz was also an ordained minister who presided over many area weddings. God speed, Griz, you are loved by many and will be sorely missed.
Goings On: Throttle Rocker Magazine will begin its Destination Bike Night series on July 2. These will be an every other Thursday bike night to be held at a different Destination. The first will be at Indian Motorcycle of Springfield located at 962 Southampton Road in Westfield. These will run from 6 to 9 p.m., and there will be vendors, music, food and more. For a complete schedule of Destination Bike Night, log on to throttlerockermagazine.com.

On July 11, it will be the Honor and Remember Bike Run, Concert and Barbecue in memory of Lance Cpl. Phillip M. Bushong. This event will be held at the Southwick Veterans of Foreign Wars Post 872 at 151 Point Grove Road. Registration begins at 9 a.m., and kickstands will be up at 11. The cost is $20 for riders; passengers and walk-ins are $15. There will be live music, a barbecue and raffles. Featured bands will be Point Black, Legion, the Remones and Redhead. The music starts at 2 p.m. with a flag presentation at 3. For information and reserved ticket information call (413) 355-8031.

Until next time, ride safe and ride smart.

Hope for Cain Please read and pass on

When we were living in Boston, we met so many wonderful people who wanted to help Lauren with her fundraisers.  One lady in particular, her name is Pam.  She was a manager of a restaurant that helped sell the purple bands.  All of her employees always made me and my family feel like family when we went there.

Now we need to pay it forward

This is a story of a little boy who lives in Ireland.  Pam is from Ireland also, so it is close to her heart.

Cian lives in my county in Ireland and he really needs a double lung transplant that can be done in Boston Children’s but it’s costing a lot of money!!! They have started a crackin for Cian, something similar to the ice bucket challenge but it’s crackin an egg over your head! People are asked to nominate friends and donate to his webpage with is


Please, please pass this along, together maybe we can help this adorable little boy who deserves to have a chance at life make it happen.

Much Love Lynne

Wisdom Teeth are Gone, all is GOOD

This is how Lauren has dental work done now


Follow up on removal of wisdom teeth

Yesterday we arrived at the hospital at 12:00 p.m., it was a long morning just wondering about this procedure.  When we arrived I really didn’t know what to expect.  Was this going to be in a dental setting like an office within the hospital, that was what I was thinking.  WRONG.

When we found the area we were to be, it was the surgical unit.  OMG, memories.  They brought us to the pre-surgical area.  We knew the drill.  Lauren had to change into the lovely hospital gown, IV was administered, then we had to go over Lauren’s medical history.  Being a new hospital, this took quite awhile.  Procedures she had done, then the med list.

We were told this was their first heart transplant patient they had. ( Made me a little nervous).At one point Lauren was like a show a tell.  Nurses came up to Lauren to ask if they could see the scar from the surgery.  Lauren was a trooper, but I could see she was a tad bit annoyed.

When the surgeon and the anesthesiologist came to talk with us about the procedure, we had to go over Lauren’s history with them.  They were being very cautious about how they could put her to sleep safely.  I had to tell them how certain medications if administered could possibly suppress her breathing which could lead to being on BYPAP.

They left and we could hear them discussing what they should do.  Then they had to look up Lauren’s muscle disease, they never heard of it.  I started to think maybe we should be in Boston, they know everything about Lauren.  But, I really felt they were going to take great precautions to make sure Lauren was safe.  When they returned with their plan, it was something I never expected.  They were going to put a breathing tube in and give her Fentanyl.  Tears started to build.  Breathing tube, breathing tube really.  Lauren was so nervous all she kept saying was I better not wake up with a trac.  They told us this was the safest way to do the surgery.  In the back of my mind, I kept saying to myself, she is just getting teeth extracted.  Could this turn into a life threatening procedure?

After a long discussion, we agreed to go forward.  Lauren was in God’s hands again.  They took her in around 2:00 and told me they would come out to talk with me when it was over.  I was told about 1 hour.  The Dr. finally came out to talk with me around 4:00.  I was so nervous because it to longer than they said.


Lauren was discharge and we were home around 5:30.

Lauren’s mouth is sore, but she was able to eat all the ice cream she wanted.


Happy Father’s Day

Happy Father’s Day to the 2 men that are special in my life

My Husband Dean and my son Michael

Love you guys so much


This picture as can guess was at a Raider’s football game tailgating.  Dean was in heaven, finally hanging out with other Raider’s fans.  Great time.

Happy Father’s Day 

To all you fathers out there.

When we were living in the hospital, these two guys always came up to see us.  My husband drove every weekend to Boston.  Slept in a chair, then would drive home to go to work all week.  My son would come almost every other weekend, to see his sister, then he always thought of me and would take me out to dinner.

I am so blessed to have them in my life.

When we are celebrating father’s day, lets remember all the fathers that are in the hospital dealing with their lives away from family members.

Love Lynne