2015 Westfield Downtown Cultural Series, great day


On Saturday October 17th, Lauren was invited to represent Donate Life at this great Event.  It was a very windy day, overtime we set her table up the wind would come by and blow everything off.  But that is the price we pay, to promote donor organ awareness.  This was a two-hour event and Lauren was able to sign up three new donor’s.  Great successes.

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Joe Whalen and his band played.  Joe is also a heart transplant receipt.  It was so cold that day, but a very nice event to enjoy.

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Joe and Lauren with one of their nurses from Brigham and Women’s Hospital in Boston Ma  They are survivors, ready to take on the world today.

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Lynne  1437940979_love_valentines_day_11

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Pope Francis speaks about Organ Donation


Organ Donation Called Ultimate Gift of Compassion

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TUESDAY, 29 SEPTEMBER 2015

To mark the visit of Pope Francis to the United States, NJ Sharing Network is reminding the public that most religions, including Catholicism, support organ and tissue donation. Pope Francis described the act of organ donation as “a testimony of love for our neighbor” when he met with the Transplant Committee for the Council of Europe, which gathered in Rome last year.
“As Pope Francis travels in the United States, we want to spread his poignant words about organ donation. At NJ Sharing Network, we know that donation is a generous, life-saving gift. We are grateful that Pope Francis has spoken so positively about the gift of life,” said Joe Roth, President and Chief Executive Officer of NJ Sharing Network.
Pope Francis is not the first pope to speak in favor of donation. Pope John Paul II said, “The Catholic Church is clear that, in itself organ donation is a good and meritorious thing. It’s a powerful expression of human solidarity. Such actions can help build a culture of life, a culture in which life is cherished.”
Not only does the Church accept organ, eye and tissue donation, it also recognizes donation as a great act of charity and love. Pope John Paul II also said, “The Catholic Church promotes the fact that there is a need for organ donors and that Christians should accept this as a challenge to their generosity and fraternal love. One of the most powerful ways for individuals to demonstrate love for their neighbor is by making the informed decision to be an organ donor.”
Nearly 5,000 people in New Jersey are waiting for a life-saving organ transplant. This miraculous task of providing life-saving organ transplants to the men, women and children on the transplant waiting list would not be possible without the selfless decision of those who register as organ and tissue donors. Registering as a donor makes a strong statement about the kind of person you are and want to be and relieves your family from the burden of having to make the decision for you during a time of trauma and loss. One organ and tissue donor can save and heal the lives of more than 50 people – a life-changing gift to the recipients, their family members and the community on a whole.
Registering as an organ and tissue donor shows an individual’s compassion for others, and can change lives forever.
You too can save lives. In honor of Pope Francis’s visit to the United States this September, register as an organ and tissue donor today

Strong words, from our Pope.

Lynne 1437940979_love_valentines_day_11

Rainy days,


When it rains, it brings back so many happy memories

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“I always like walking in the rain, so no one can see me crying.”
― Charles Chaplin

Rain has so many different emotions for me.  The one that I feel when it rains is happy.  I know many people would say “really”, but yes it is true.

The quote above says, no one can see you cry.  Happy tears.

Since living in the hospital with Lauren, every time she was allowed to go outside for a bit, (it didn’t happen a lot), but when the doctors would give her permission it was raining.  We didn’t care, Lauren needed to go outside just for her sanity.  I can still picture in my mind, the first time.  Lauren, her nurse and myself wheeling her outside, we were under a covering from the hospital.  Lauren told us to wheel her into the rain.  The moment the rain hit her, she just put her head upward and said  “this is the best feeling in the world”.  I stood there and watched her.  Tears were rolling down my face, just watching how happy she was.  She just sat in her wheelchair, with a big smile on her face feeling the rain as if it was the best thing in the world.  And it was.  Lauren watched cars driving by, people running to get out of the rain and she was in heaven.

It reminded me how we take so much for granted, just the little things like rain.  After that day, when it would rain and I would go outside, I would look at the rain with a different outlook.

Every now and then, a rainy day is a welcome.  We need it to water our yards and gardens.  I look at it as a cleansing of the air also.

Next time it rains, take a moment to think about people who would love to feel the rain.  To you it may be an inconvenience, but to many, it would be a dream come true to feel it.

Lynne 1437940979_love_valentines_day_11

You can only donate your organs if:


You can only donate your organs if:
you express a wish to donate your organs while you are alive, or the person closest to you (next of kin) gives their permissions.

Your organs cannot be removed if you or your next of kin have not given permission.
Organ donations come from people whose death has been confirmed while on a ventilator in a hospital intensive care unit (donation after brain stem death) or from people whose heart has stopped beating (donation after circulatory death). In some cases, people can donate their organs if they die in a hospital emergency department or are pronounced dead on arrival at a hospital.

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Organs can only be removed from someone with consent. You can give consent by indicating that you want to be an organ donor if you die. The best way to do this is by joining the Organ Donor Register, as this makes it easier for medical staff to establish your wishes.
If it isn’t known whether you wanted to donate your organs in the event of your death, the person closest to you will be asked what they think you would have wanted and they can give consent to donation. That is why it is vital to let your family and friends know that you want to be an organ donor.
What is organ donation?

Organ donation is giving an organ to help someone who needs a transplant.  The major organs that can be donated include the:
heart
liver
lungs
kidneys
pancreas, eyes and skin.
Organ donation saves thousands of lives, and can also improve the quality of life for many others. Between April 1 2013 and March 31 2014, 3,569 people had their sight restored by donated corneas.

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Becoming an organ donor

The Organ Donor Register is a confidential database that contains the names and wishes of people who want to be organ donors. It helps doctors to understand and carry out your wishes.
If you want to be an organ donor, as well as joining the register, it’s important to tell your family so that they are prepared in case anything happens to you. Organ donation will be far easier and comforting for your family to accept if you have already discussed your wishes with them.
Many people gain a great deal of comfort from knowing that the death of a loved one has helped to save the life of another person.
Join the Organ Donor Register

http://www.donatelife.org

You can also sign up to the  Organ Donor Register when you
fill out a driver’s licence application form online.

Please take a moment to think about this subject.

Lynne 1437940979_love_valentines_day_11

Have you ever wanted to become a SUPER HERO ????????????????????


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   I remember from my childhood, when you heard the words, “SUPER HERO” you though of these characters.  Batman & Robin, WonderWomen, Superman and the rest of this bunch. I wanted to have super powers, who didn’t want to become a Super Hero.  I know that was only a dream.  How can Lynne Robitaille be a SUPER HERO?

Well, I made my dream come true.

I BECAME A SUPER HERO 

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“I AM A REGISTERED ORGAN DONOR”

ORGAN DONORS ARE HEROS

You to can become a SUPER HERO, register today.

http://www.donatelife.org

These are the latest statistics of people who are waiting for organs.

How many people are waiting for an organ transplant?

Currently, close to 124,000 men, women and children in the United States in need of a lifesaving transplant.
Largely due to the rarity of donation opportunities, only about 28,000 organs are transplanted each year.
As a result, 21 candidates die each day for lack of a donor.

I remember being in the hospital with my daughter, praying she would not fall into the last statistics.  Lauren was given a second chance of life from a SUPER HERO.  

Also I would like to mention, you can also be a living donor.

http://www.transplantliving.org/living-donation/being-a-living-donor/

Join me and become a SUPER HERO

Lynne  1437940979_love_valentines_day_11

Sunshine Blogger Award


I have been nominated for the                  SunshineBloggerAward

Sunshine Blogger Award

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I was nominated by Scribbles & Musing.  Thank you so very much

http://scribblesandmusings.com

. Thank you for the nomination.  My first though was omg, people do like my blog.  I am very passionate about what I write about.

The Sunshine Blogger Award is a way for bloggers to get to know each other and also get other bloggers to connect with each other.

The RULES of accepting the Sunshine Award are as follows:

Acknowledge and thank the nominating blogger with a link to their website.
Share 11 random facts about myself by answering the questions the nominating blogger has created for me.
List 11 bloggers I believe deserve some recognition and a little blogging love! (I can’t nominate the blogger who nominated me.)
Let the 11 bloggers know I nominated them.
Post 11 questions for the bloggers I nominate to answer.

Questions for my nominees:
Who is your favorite author(s)?   I love to read Danielle Steel, when we take our summer vacation to the beach.  My time!!!
What hobbies do you have?    I love to do crafts.  I had a business called Country Look Designs Gift Baskets. I loved to design personalized gifts.  After Lauren started to get sick, I had to give it up to take care of her.  I also enjoy gardening.
What is one thing that is always guaranteed to make you smile?   That’s an easy one, when my family is happy, I am happy.  My family means the world to me.
Are you an Android or Iphone person?   Android
Do you have a phobia? If so, what and why? (had to ask)  After living in the hospital so long with my daughter, I have a hard time being in a confined area.  There are times now even when I go out shopping, I find myself almost like in an anxiety attack.  Time to leave.  Also the one phobia I always have had, spiders.
How did you get into blogging?  When I started my first blog, Lauren was in the hospital.  I could not keep up with all the phone calls.  Then I thought I would start a blog, so  I could keep everyone informed on Lauren’s condition.  Now my blog is about Life after a Heart Transplant.  I have been able  to meet so many incredible  people from all over the world.
Introvert or extrovert?  To be honest, I believe I can be both.
Do you sing along with the radio even if other people are around?   Of course, when I hear a song on the radio that moves me, music is great therapy.
What is your favorite season and why?   Well, I live in New England, so we do have the 4 seasons.  I love them all.  But to pick my favorite, it would be spring.  Everything new and blooming,  There is nothing like after a long cold winter, to finally go outside.  My living space is now doubled.
What is a goal that you have for this year?  My personal goal for this year is to finish writing my book and to get it published.  The book is about our journey living in a hospital, being on the heart transplant list. Also it entails information that I wished I knew, when we were in this situation.  To be able to help others in coping, living and just to let them they are not alone.  Plus my son is getting married, time to plan a wedding.  To be able to give them the wedding the in vision.
What would you change about yourself, if you could?  That’s a hard one, but the only thought that keep’s coming to mind is to get healthier.  I have been pushing my daughter to take care of herself, that (like most people do) tend to forget about themselves.  Need to take time to take care of Lynne.

My nominees (in no particular order) are the following:

So to all my nominee’s here are your questions

  • Describe yourself in 4 words?
  • If you could visit any place in the world, where would you go?
  • Are you a registered organ donor?
  • What do you call your happy place?
  • What is your number 1 priority in your life today?
  • Are you a political person?
  • Dog or cat?
  • Favorite color?
  • Are you more comfortable dressing up or wearing comfy cloths?
  • Would you be able to be a public speaker?
  • Last one, give a quick description of yourself?

Looking forward to learning more about each of you!

Lynne  1437940979_love_valentines_day_11

What is happening to our country….


Plan for cuts in disability benefits, but hope for the best

This morning I came across this article from USA TODAY POST, it really got me thinking.

The future for Medicare and Social Security might not look bright at the moment, but it’s particularly bleak for the government’s disability insurance program.

According to the Social Security trustees’ report released last month, the disability insurance trust fund will run out money in 2016 and it needs immediate attention. In the absence of any attention, millions of Americans will receive an automatic 19% reduction in their Social Security disability benefits in the fourth quarter of 2016.

Why the cuts? Social Security is precluded from spending money it doesn’t have, according to a recent report by the Center for Retirement Research at Boston College; benefits must be in accord with disability insurance payroll tax revenues.
USA TODAY
How to plug Social Security tax drain and keep more money

To be fair, most experts don’t expect lawmakers in Washington, D.C., to cut Social Security disability insurance benefits. “The reality of the situation is that Social Security disability insurance benefits play a vitally important role in the lives of just under 11 million people in this country today, nearly 9 million disabled workers, along with an additional 2 million family members, including 1.7 million children,” says Kurt Czarnowski, a principal with Czarnowski Consulting in Norfolk, Mass.

In the article it had a comment page so I started to read them… very interesting opinions on this subject.  The majority of the comments pertained to persons who apply for disability, who are not deemed a disabled person.  I believe that to be true.

Over the past, let’s say decade, I have heard of people applying for disability because of minor medical issues.  OK, maybe they cannot do the job they used to do, but in our day and age, there are so many jobs out there that a person can do, without it being a job that affects their medical issue.

In our society, I truly feel more and more people are just looking for the hand out.  I was told by a social worker that when people loss their jobs, being fired or laid off, they collect unemployment.  Then when it runs out, they turn to social security for money.  Have they looked for a new job, probably not.  Their live style changes and like not having to go to work.  This is what is called mailbox money.  So now they have medical issue’s they claim prevents them to work.

When we watch TV, how many commercial are on now, from lawyers saying “call me if you have been declined for social security”.  They are on the band wagon now also.  These lawyers follow the trend of how they can make a buck also.

This subject frustrates me, for reasons people just want to use the system out of pure laziness on their own behalf.  I know people who are on disability, because they really NEED it, of a truly disabled condition.  They want to work, they want to take care of themselves, they want to be independent, but it is not possible for them.

So now with so many false claims being submitted, first of all you should be ashamed of yourself.  When a person with a real disability applies, first of all social security has what they call the Blue Book they refer to.

Disability Evaluation Under Social Security has been specially prepared to provide physicians and other health professionals with an understanding of the disability programs administered by the Social Security Administration. It explains how each program works, and the kinds of information a health professional can furnish to help ensure sound and prompt determinations and decisions on disability claims.

Another quick thought, think about all the veteran’s out there, they fought for our country, our safety, that have been injured during their line of duty, now live with a disability and they have a hard time to help get assistance, think about that one.

I guess I can go on and on this topic, what are your thoughts?

Lynne 1437940979_love_valentines_day_11

What’s up with Oral Surgeons ????


When you have a bad tooth ache or are in pain from your wisdom teeth, you are recommended to see an Oral Surgeon.  You say OK.  Now you call the office, you’re in pain (nothing is more painful than a tooth ache) and they say to you “the dr. can see you in 3 weeks for a consult first”.  Your first thought is “are you kidding me, 3 weeks!!!!!”

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Now the search continues, you call other offices and they say the same thing.  I get it, they are busy, but how is a person to live and go on with their daily lives with that kind of pain.  Impossible.

A good friend of Lauren’s is going though that right now.  We can relate to her, because when Lauren was having pain with her wisdom teeth, she had to wait almost a month before they would see her.  Even with her transplant team from Boston calling, nothing sooner.

In this day and time, when a person needs medical care, especially for mouth pain, it should be addressed. Any comments on this subject ?????????

Lynne

Lauren was named Chicopee’s Ambassador for Donate Life New England


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Today was a special day…Chicopee has a new Ambassador.

Lauren Meizo, was given the official title of

Chicopee’s Ambassador for Donate Life New England

Pictured with Lauren is Matthew Boger, State Relations for Donate Life.  They were at the Chicopee Registry this morning, spreading the word.

Lauren’s duties will be to educate, inform and tell her story about organ donation.

If you have an organization, or event that you feel Lauren would be an asset, to the event to speak on this topic, please feel free to contact us.

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My daughter, amazing, strong, beautiful, with a strong willingness to help others.

A very proud mother

Lynne

A note from Lauren ***

I am honored to be thee Ambassador of Donate Life for my community. Spreading the importance of organ donation has become my new passion. I am one of the lucky ones who actually was able to receive an organ, my heart in time. This is not true for all. Currently, over 123,000 people are waiting, many with their lives on hold to hear those five life changing words, “we have found a match!” while others may never get that second chance, all due to a shortage of organs. Before I went through all I did, I never put any thought into organ donation. So now that’s why I am here to encourage others in becoming Organ Donors!

With sincere love & all my heart,

Lauren

Ambassador for Donate Life, NE