football season is here…..


My fun post.  Football season is here..  

                      My buddy Joe and I wearing our new customized Patriot’s jerseys.  We are Patriots fan’s so we thought we would join the team with our last names on them.  The numbers are special to us, they are not player’s numbers, they are our own.

880-MMS-1443437971937-attachment1-2015092795134515                     879-MMS-1443437962659-attachment1-2015092795134525

patriots

Football season to me means, good friends getting together and just letting loose for a couple of hours.  Hooting and hollering.  Sometimes you just need to get it out of your system.  It’s my release.

new-england-patriots1

Let’s have a fun and exciting season.

Now a dedication for my husband, Dean.  Oakland Raider’s fan for life.

6126146

12021994_1019845691380738_1400316435_n

He will support my team when they play, so I support his team when they play.

DSCN2860yes that is me, we went to a Raider’s game in New Jersey, I hate to say this, but had a great time hanging out in the black hole. Raider fans know how to tailgate. OMG

DSCN2873

Seats were amazing, 5 rows up.  They were playing the Jet’s.  Not a Jet’s fan at all. So after a couple of beers, I had a great time.

LET MAKE SURE WE ALL HAVE A SAFE AND EXCITING FOOTBALL SEASON.

Leave a comment, just wondering who your favorite team is???

Parent’s experience PTSD: Post Traumatic Stress Disorder


I came across this article written by Barb Roessner.  For awhile I was starting to think I was just crazy or weak.  PTSD : post traumatic stress disorder is real.

Living in the hospital with my daughter for close to almost a year and a half, was very hard.  Always wondering and worrying with fear, no privacy and being closed in.  All my freedom was taken away. After writing that sentence, all I feel is guilt.  Oh my Lord, how my daughter must have felt.  As a parent, I had to be the strong one for Lauren.  I had to keep a smile on my face with tears from inside.  When she was feeling down, I would do something crazy, like just break out in a dance just to try to make her laugh.  She would say to me “your nuts mom”.  Now when I think of it, I guess I was nuts.  I was trying to cope with our situation also.

This picture was taken when we were watching a patriot’s football game.  I was rubbing Lauren’s feet to make her more comfortable, and I was wearing my Patriot’s hat.

cam00967

Living Life

PTSD is so real.  There is not, one day that I do not have a flash back or memory though about what has happened.  Some people say to me, you need to move forward.  I am, but the memories do not go away.  I guess I’m always afraid of going back.

To this day I still have a hard time going to a store, I can only stay in there for a short period of time, then I start to have anxiety, I do not like to be in close places anymore.  Also, I have a hard time leaving my house.  My house is my security.  When I am home all is well.  I know with time, it will get better but that saying “NO PLACE LIKE HOME” is so true.

Can Parents Experience PTSD from Their Child’s Heart Condition?
Written by: Barb Roessner

PTSD_SS_105172253_101613-617x416

When most people think of post-traumatic stress disorder (PTSD), they imagine military veterans returning home from combat. Soldiers have been so exposed to human tragedy, their minds become conditioned to fight or flee, and surprising things—a firework exploding, someone dropping a book on the bus—could transport them back to the battlefield without warning.

People with PTSD may have trouble sleeping and struggle with constant anxiety. They feel like they’re on alert every second and struggle with memories of the traumatic events that are vivid enough to feel as if they’re happening to them again, according to the U.S. Department of Veterans Affairs.

But PTSD doesn’t just affect veterans. It can develop in individuals who have experienced any type of trauma—including parents who are watching their children struggle with a serious heart condition.

No, they are not in the midst of violence. And no, they are not bearing the medical burden of the heart condition. But the parents feel the agony of their child’s illness as if they are going through it themselves. They may always fear a meeting with a doctor, having heard the worst there before. Or they might forever associate their child crying in the night with a moment when the disease was especially trying.

Honestly, I think all families of kids with heart conditions have PTSD to varying degrees.

Think about it: the official definition of PTSD from the American Psychiatric Association doesn’t only include those who experience the trauma, but also those who witness it.

For families whose children have serious heart conditions, the parents’ stress level is high and rising all the time. We have cared for some families in which one or both of the parents sought treatment for PTSD. This usually happens during the waiting period: that time between being placed on the heart transplant list and actually getting a heart.

During that period, parents are on edge. They are constantly wondering when or if their child will receive a new heart in time. Then, they are faced with close calls that trigger their stress level to spike even higher, including:

Stroke
Kids with complex congenital heart conditions are at a higher risk of stroke. And not just 1 stroke, but they are at higher risk for recurrent strokes, according to a July 2012 study in the journal Annals of Neurology. Because their hearts are not functioning at their best, blockages can sometimes prevent blood from being pumped to the brain. Just like when anyone else has a stroke, this could cause serious disability or be life-threatening.

Cardiac arrest
Sudden cardiac arrest is a technical way of saying that the heart stops functioning. Congenital heart diseases—namely cardiomyopathy—are among the top reasons why children go into sudden cardiac arrest, according to a March 2012 study in the journal Pediatrics.

Extended waiting
Children listed for a heart transplant are more likely to pass away waiting than people waiting for any other type of solid organ transplant, according to a February 2009 study in the journal Circulation. As time goes by, the wait wears on parents, and it doesn’t get easier. That could be because one of the key risk factors for PTSD is feeling powerless, according to the U.S. Department of Veterans Affairs.

Then, there’s all the other complications that can happen. Some children have to have limbs amputated because of poor blood circulation. Some parents have literally watched their children stop breathing, turn blue and then had to entrust them to doctors and machines on faith that they’ll see them alive again.

For parents in any of these situations, when it’s a child—your child—you might as well be in the throes of a violent assault. The stress response is about the same.

I’ve only mentioned the medical complications. Let’s not forget about the strain on marriages, the financial burden that leads some families to bankruptcy and the issues that can arise with other children.

Why Addressing PTSD is So Important
The long-term issues of unchecked PTSD are serious, mainly because a prolonged fight or flight response is so taxing on the body.

Think about it: Your body is gearing up to protect itself from what it perceives to be an attack. The heart rate spikes to get more blood to your muscles, according to the National Alliance on Mental Illness.

Breathing speeds up, sometimes to the point of hyperventilating. Blood sugar spikes. If the body experiences this stress response too much, it could develop into long-term problems with high blood pressure.

This article is so true.

If you know someone who is in this situation please pass this on.  They are not alone.

Lynne 1437940979_love_valentines_day_11

Reflections


This is a follow-up post from yesterday’s post.

September 16, 2015 Lauren spoke at the Chicopee Chamber of Commerce Breakfast as a guest speaker for Donate Life. It was a packed house. We were both nervous.  Before Lauren became very sick, I had a business called Country Look Designs Gift Baskets.  When I had my business, I was a member of this Chamber,  it was a great way to meet other business people in the area.  I did see some familiar faces,which was very nice.

When Lauren was giving her speech, she mention that she had a PA line in her neck (we called it her leash).  This is Lauren with her PA Line in, before transplant .

MEILA1_6C76499A-E84A-AC38-09996604D2084D09

This is a post Lauren wrote while waiting for her heart:

 I need to have a “PA line” in my neck with two special medicines helping my heart beat stronger to be considered a 1A top of the list. Well I ended up getting the line in on that Friday and things were looking great until about 10:30 at night. My mom was rubbing my feet trying to relax me so I could fall asleep, then all of a sudden my heart rate started going up. Long story short, the ordeal went on until almost two in the morning. My room was filled with doctors and nurses from the ICU, which one of the doctors tried to jiggle the line. Once he had done that, all hell broke loose. I think there was a kink or something because after that a ton of the medicine released and my heart rate went up to 158. I had the x-ray machine in my room, ekgs done, the whole nine yards. My mom was crying because you could literally see my heart beating through my 101 lb body. All of a sudden my nurse told me they were ready to sedate me… and put the shock stickers on me.. yup, they were ready to jolt my ass! Scary! Instead they ended up pulling the line and for the rest of the weekend I was bumped down to a 1B statis. It was a stressful weekend because we were unsure if I was going to be able to get the “LEASH” back in my neck. I call it a leash as a joke because I only have about a 3 foot radius to walk around with it in… Just imagine being 22 and basically being bed bound for 10 days at a time while all your friends are progressing and having fun with there lives, actually imagine being any age and told you had to deal with this.

This picture was taken a couple of months after transplant.

20140127_140409

My daughter Lauren endured every complication that could happen during her recovery.  It was a long road for her, but for the most part she had that pretty smile on her face.  She didn’t want to show me her fear, nor did I. Together we stayed strong, because we were going home someday.

This was the day we left the hospital, after 5 months of recovery.  She never gave up, she still had the trac in and also her feeding tube. But we are going HOME !!!!!!!

When we walked through these doors in March of 2013, never thought we would be walking out May 2014.It was a long road, but I told my daughter we would be walking out together, with what we came for.  Thank you GOD…

20140512_175554

Lauren & Lynne 1437940979_love_valentines_day_11

So many mixed emotions on this day, today’s my birthday, plus so many mourning this day


20150911_080731

When I woke up this morning, came down the stairs this is what I saw.  I am so blessed.  My sneaky daughter got up last night, after I went to bed and did this.  Things like this make my heart melt. Love you Lauren

14 years ago, changed the way I feel about September 11th.  I find it hard to celebrate when I know today so so many families lost loved ones on this day.

My husband asked me what I wanted to do for my birthday.  He suggested going away for the weekend, taking me out for a nice dinner, whatever I wanted to do.  I told him, a perfect birthday, I just want to stay at home and have a family dinner. I am so grateful for my family and our home.

We may have gone through so much in our lives, I don’t take things for granted anymore.  Being at home with my family is the perfect day to me.

Please take a moment to remember all the innocent people who are no longer with us.

Love Lynne  1437940979_love_valentines_day_11

Update on Cian, please read


Little Cian McDonnell Lynch is four years old. He is battling a very rare illness that has no cure.
Email:hopeforcian@gmail.com
http://www.hopeforcian.com/

12006146_1525023411121985_5928326806849911543_n

Update from Lisa (Cians mother): Today was Cians first day back at pre-school. He was so excited going back.

“We are trying to make life as normal as possible for him while we wait for the liver biopsy, results and a final decision as to if Cian will definitely be put on the list for a double lung transplant in Boston. Cian is in the process of getting tests done before getting the biopsy to ensure he didn’t pick up any type of infection while in Boston Childrens Hospital recently. So far the tests have been clear. We should have dates for the biopsy very soon. Overall Cian continues to be a happy little boy full of fun despite all he is going through. He’s not able for much exercise or moving around as he gets very breathless and sick when he overexerts himself. We want to say a huge thank you to everybody that has supported Cian to date. The support is amazing. We are so grateful to you all 💜”

Since I have heard about Cian and his family, my heart aches for them.  I know the frustration of the waiting game.  Wondering if my child is going to live or die.  I can feel their pain.  When my daughter Lauren was in the hospital, first waiting to find out if she would be accepted to be placed on the transplant list, then after being accepted, waiting for a donor.

During my time in Boston Massachusetts, one day I needed to get out of the hospital.  I took a walk around outside, it started to rain.  I came across a cute little restaurant called Penguin Pizza.  When I entered the place, I felt so alone.  Everyone was with friends having a great time. So I took a seat at the bar (didn’t want to sit at a table alone), on that day, my time in Boston changed.  Everyone that worked there was so friendly, most of them were from Ireland, loved the accents.  Then I met  Pamela O Brien Carthy, she was the manager there.    I remember how Pam made me feel so welcome.  She knew I was new there, so Pam took the time to talk with me.  I told her about my daughter, and how I was living in the hospital with her.  Pam was very comforting and from that day on, I felt I had a friend in Boston.

Lauren and I started a fundraiser for expenses from her hospital room.  We order purple wrist bands to sell.  Pam and her crew jumped in and helped to sell them from her establishment.  One day my husband Dean and I stopped in and to our disbelief, the crew was all wearing the bands, then looking around so many of the customers were wearing the bands also.  They raised so much money for us, I could not believe it.

We have stayed in communications to this day.  That’s how I heard about Cian.

Please share this post.  Cian and his family need our help and prayers.  At this time he is back home in Ireland, waiting for test results.  I am praying he comes back to Boston soon, to receive his gift of life.  When that happens, I would love to make a trip to Children’s Hospital in Boston to be able to meet him and his family.  Also I would love to meet up with Pam again.

Please click on the link to learn more about this precious little boy.
http://www.hopeforcian.com/

Lynne  1437940979_love_valentines_day_11

Time to get in shape


manwomanstretch1-548-x-406

With summer coming to a close, my husband and I have decided it’s time to get healthier.

My husband came home from work the other day and said “either I lose weight or I need to buy bigger suits”.  I looked at him and started to laugh, and said you know what we need to do.

So together we are going to do this as a team.

I will post updates of the progress.

Lynne 1437940979_love_valentines_day_11

Make today a beautiful day


20150819_045723

The sun is rising.

  I took this picture when I was at the beach, a beautiful morning sunrise.

I am so blessed, that I had the opportunity to be able to watch this magical site.  It’s a new day.

When you start your day today, be thankful for everything and everyone you have in your life, there are no guarantee’s we have tomorrow.  Say a prayer for those are suffering.  Every morning I start my day with a prayer  for anyone who many be living in the hospital, that their gift of life will come to them today.  This poem was written by Suzy Kassem.

 Each day is born with a sunrise
and ends in a sunset, the same way we
open our eyes to see the light,
and close them to hear the dark.
You have no control over
how your story begins or ends.
But by now, you should know that
all things have an ending.
Every spark returns to darkness.
Every sound returns to silence.
And every flower returns to sleep
with the earth.
The journey of the sun
and moon is predictable.
But yours,
is your ultimate
ART.”
― Suzy Kassem

Today is Saturday, the weekend.  To some people it’s called “finally the weekend is here”, to others it is just another day.  The only thing you have control of, is your approach to the day.

Lynne 1437940979_love_valentines_day_11

The ladies are coming today………..


DSCN2921

This is my family.

My mother, myself, my sister Laureen and my sister Donna.  My mother and sister Laureen lives in Florida and my sister Donna lives in Virginia.  Today they are flying and driving to come here to my house today.  Then tomorrow we are off to Old Orchard Beach Maine to spend time together.   This will be the first vacation we all take together, since we were kids.

After the last couple of years, we are now learning how important it is to just do it.  We always had reasons before not to be able to just say “let’s do it”, but now every moment is precious. Normally I would fly to Florida once a year to see my mother and sister, but this past year it will be the 3rd time I see my mom.  It is hard when they live so far way.

I am blessed t have my family, so now it’s time to enjoy being together.

Look out Old Orchard Beach, the ladies are coming to have fun.

Lynne