Little Cian McDonnell Lynch is four years old. He is battling a very rare illness that has no cure.
Update from Lisa (Cians mother): Today was Cians first day back at pre-school. He was so excited going back.
“We are trying to make life as normal as possible for him while we wait for the liver biopsy, results and a final decision as to if Cian will definitely be put on the list for a double lung transplant in Boston. Cian is in the process of getting tests done before getting the biopsy to ensure he didn’t pick up any type of infection while in Boston Childrens Hospital recently. So far the tests have been clear. We should have dates for the biopsy very soon. Overall Cian continues to be a happy little boy full of fun despite all he is going through. He’s not able for much exercise or moving around as he gets very breathless and sick when he overexerts himself. We want to say a huge thank you to everybody that has supported Cian to date. The support is amazing. We are so grateful to you all 💜”
Since I have heard about Cian and his family, my heart aches for them. I know the frustration of the waiting game. Wondering if my child is going to live or die. I can feel their pain. When my daughter Lauren was in the hospital, first waiting to find out if she would be accepted to be placed on the transplant list, then after being accepted, waiting for a donor.
During my time in Boston Massachusetts, one day I needed to get out of the hospital. I took a walk around outside, it started to rain. I came across a cute little restaurant called Penguin Pizza. When I entered the place, I felt so alone. Everyone was with friends having a great time. So I took a seat at the bar (didn’t want to sit at a table alone), on that day, my time in Boston changed. Everyone that worked there was so friendly, most of them were from Ireland, loved the accents. Then I met Pamela O Brien Carthy, she was the manager there. I remember how Pam made me feel so welcome. She knew I was new there, so Pam took the time to talk with me. I told her about my daughter, and how I was living in the hospital with her. Pam was very comforting and from that day on, I felt I had a friend in Boston.
Lauren and I started a fundraiser for expenses from her hospital room. We order purple wrist bands to sell. Pam and her crew jumped in and helped to sell them from her establishment. One day my husband Dean and I stopped in and to our disbelief, the crew was all wearing the bands, then looking around so many of the customers were wearing the bands also. They raised so much money for us, I could not believe it.
We have stayed in communications to this day. That’s how I heard about Cian.
Please share this post. Cian and his family need our help and prayers. At this time he is back home in Ireland, waiting for test results. I am praying he comes back to Boston soon, to receive his gift of life. When that happens, I would love to make a trip to Children’s Hospital in Boston to be able to meet him and his family. Also I would love to meet up with Pam again.
Please click on the link to learn more about this precious little boy.