I would like to think Lauren and I helped, in bringing awareness


U.S. organ transplants reach 30K milestone, thanks to increased donations
Posted on January 13, 2016
http://www.usatoday.com/story/news/2016/01/13/us-organ-transplants-reach-30k-milestone-thanks-increased-donations/78695138/

Organ transplants in the United States reached a milestone in 2015, exceeding 30,000 for the first time, a non-profit group reported Wednesday.

Those 30,973 transplants of kidneys, livers and other organs were nearly 5% more than performed in 2014 and came after years of fairly slow, steady increases, said officials with the Organ Procurement and Transplantation Network (OPTN). The network coordinates U.S. transplant activities.

“This landmark achievement is a testament to the generosity of the American public to help others through donation, and their trust in the transplant system to honor their life-saving gift,” the group’s president, Betsy Walsh, said in a statement.

Stepped-up organ donations, rather than any breakthroughs in transplant surgery, likely drove increases in recent years, said David Klassen, the network’s chief medical officer. Transplant centers also have worked to improve logistics, so that fewer donated organs are discarded, he said.
But, he said, the number of people waiting for organs – now 121,700 – “still dwarfs the numbers of donors each year.”

As of Tuesday, 78,122 of the people on the waiting list were considered “active,” meaning they are eligible for transplant right away. People may move on and off the active list as their health fluctuates, Klassen said. Most are waiting for kidneys, which can come from living or deceased donors.

Each day, about 22 people die while waiting for organs, the network says.

“It’s great news that the number of transplants continues to increase each year,” saidJennifer Martin, vice president for constituent services at the National Kidney Foundation, a non-profit advocacy group. “But there’s still a lot of work to do to get organs for everyone who needs them.”
“We could save thousands of more lives each year if more Americans would just take a little time to register as donor, talk to their families about their wishes,” and encourage others to do the same, said David Fleming, CEO of Donate Life America, a non-profit group that runs a national registry at DonateLife.net. Registries also are maintained by every state and listed at organdonor.gov.

Details from the 2015 transplant data:
• 81% of transplanted organs came from deceased donors.
• The share of donors and recipients who were African American or Hispanic continued to increase – important because they are over-represented on transplant waiting lists. Nearly 22% of recipients were African American and 15.5% were Hispanic.
• Kidneys accounted for nearly 58% of transplants, followed by livers (23%), hearts (9%) and lungs (7%).
Posted in Community News, News
Donate Life America Announces 2015 James S. Wolf, M.D., Courage Award Winner
Posted on October 30, 2015 by cnews

RICHMOND, October 19, 2015 – Donate Life America (DLA), a national non-profit organization committed to increasing the number of donated organs, eyes and tissue available to save and heal lives, while continuing to develop a culture where donation is embraced as a fundamental human responsibility, will present David Fleming, Senior Writer, ESPN The Magazine, with the James S. Wolf, M.D., Courage Award tomorrow at DLA’s annual meeting in New Orleans, LA.

The James S. Wolf, M.D., Courage Award is named in honor of the transplant surgeon pioneer who founded the Coalition on Donation (now Donate Life America). The award is presented annually to an individual outside the professional donation and transplantation community, who has played a significant national role in helping to educate the public about organ, eye and tissue donation and promoting donor registration.

ESPN The Magazine writer David Fleming’s interest in tissue donation was piqued with a single phrase: “cadaver tissue.” Dave wondered what it meant. After some initial research, he called AlloSource, a tissue bank in Centennial, Colorado, to see if he could learn more about tissue donation. He went above and beyond, asking questions and learning about a very complex process. His experience is detailed in his online and print piece, “Carson Palmer’s Lasting Connection,” featured in ESPN The Magazine, one of the most popular magazines in the U.S. – read by 15 million people per issue.

Dave also flew to Illinois to further his understanding of the organ and tissue procurement side of donation. He met with Gift of Hope Organ & Tissue Donor Network, a donor family and a tissue recipient so he could see firsthand how donation affects people on both sides of this meaningful process. These meetings informed a new piece of the story, “Tissue Donation is the Ultimate Gift,” an article that ran online and was very positively received. Many people commented on both articles that they would like to see more pieces like these from ESPN and that the story was important and exceptionally well told.

The social media reach of Dave’s article, “Carson Palmer’s Lasting Connection,” included 24,000 shares and over 180 comments, for example:

“Thank you for running this story, I’m a kidney transplant recipient and without a transplant would probably not be here at all. The public needs to hear these stories so they will consider becoming a donor. It’s the greatest gift you can give or leave when you die. You have the power to save someone’s life.”

“Every sports fan, nope make that every human being, ought to make certain that box is checked on your driver’s license. It won’t cost you a thing, and as science progresses more and more people will benefit, from a single donor. I’ve also had multiple knee surgeries, and as a USC alum I’ve always been a fan of CP. Big thanks to Mrs. Hyde for her most gracious gift. I’d like to think a part Julie lives on, in Carson and those touched by your kindness.”

Dave has now encouraged those inside and outside the sports industry to stop using outdated terminology and to use “donor tissue” instead – language that honors and respects the gift given by the donor and donor family.

Dave educated a new audience about donation, worked tirelessly to ensure this story would reach as many people as possible. For his outreach and commitment to educate the public about organ, eye and tissue donation, DLA is honored to present David Fleming with this year’s James S. Wolf, M.D., Courage Award.

About Donate Life America

Donate Life America is a 501(c)3 not-for-profit alliance of national organizations and Donate Life State Teams across the United States committed to increasing the number of donated organs, eyes and tissue available to save and heal lives. Donate Life America manages and promotes the national brand for donation, Donate LifeSM; develops and executes effective multi-media donor education programs; motivates the American public to register now as organ, eye and tissue donors; and assists Donate Life State Teams and national partners in facilitating high-performing donor registries.

Lynne 1437940979_love_valentines_day_11

UNITED STATES ORGAN WAIT LIST (CANDIDATES) March 25, 2015


UNITED STATES ORGAN WAIT LIST (CANDIDATES) March 25, 2015

TOTAL CANDIDATES 122,579

KIDNEY: 101,283
LIVER: 15,108

PANCREAS: 1,044

KIDNEY/ PANCREAS: 1,957

HEART: 4,205
LUNG: 1,544
HEART/LUNG: 49
INTESTINE: 273

This picture is my favorite picture, the day my daughter and I walked out of the hospital after her heart transplant.  My goal is to make sure more families are able to take the same picture. To walk out of the hospital with their loved one.

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An organ transplant saved my daughter’s life. You have the power to SAVE up to 8 lives. Register to be an organ donor today!
SOURCE: UNOS data accessed November 11, 2015

Please consider registering to become an organ donor.
http://www.donatelife.com

lynne  1437940979_love_valentines_day_11

Finally feeling better


Last Friday I finally had my back surgery.  All went well.  The pain that I was experiencing is gone.  Now it is only the pain from the surgery area, but that will go away in time.

Now this is a different picture.  The roles are flipped.  I’m in the hospital gown and Lauren gets to sit in the chair on the side of the bed.  She kept telling me “mom you got this”, after what she has been through I kept saying this is a walk in the park for us.

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Lauren was making fun of me because I kept making my bed with the baskets nice and folded on me.

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My husband, Dean always by our side no matter what.  Not one of my best pictures, but it is what it is.

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So my surgery is done and gone, and my mother had surgery on Monday.  All went great for her also.  She is at home, just an over night stay.  At this time she has two great nurses taken care of her, my sisters Donna and Laureen.

This year brought our family 3 surgeries.  They say everything runs in 3, so this family is done.

Time to enjoy life,

Lynne 1437940979_love_valentines_day_11

surgery was rescheduled


Yesterday afternoon I received a phone call from my surgeon’s office, not something I wanted to hear.  They had to reschedule my surgery for Friday morning now.  The Dr. had an emergency surgery he has to preform today.  I could not believe what I was being told. I understand emergencies, but I kept saying to myself you have to be kidding me.

 Two more days with this pain, I just want to feel good again.  I want my life back.  My husband says he want his wife back.  Lord knows we know what it is like to have to wait, we know what it is to live with someone in pain, but in my mind I keep saying, enough is enough for this family with medical problems.  To help me get through this I picture in my mind others that are in the hospital with bigger problems than mine.  I am lucky I am at home waiting. If anyone has experienced pain from your sciatica nerve you know how I feel.  If not this is what it feels like:

Web MD : Pain that radiates from your lower (lumbar) spine to your buttock and down the back of your leg is the hallmark of sciatica. You might feel the discomfort almost anywhere along the nerve pathway, but it’s especially likely to follow a path from your low back to your buttock and the back of your thigh and calf.

The pain is  a sharp, burning sensation or excruciating pain. Sometimes it can feel like a jolt or electric shock. It can be worse when you cough or sneeze, and prolonged sitting can aggravate symptoms. Usually only one side of your body is affected.

Some people also have numbness, tingling or muscle weakness in the affected leg or foot. You might have pain in one part of your leg and numbness in another part. 

So two more days, find my inner strength, love from my family and friends I got this. Like  I used to tell Lauren, you are a strong pollock so now she has been saying this to me.  Also one more thing on my mind, my mother is having surgery February 1st.  I wanted to be there for her, but I cannot physically.  I live in Massachusetts and she lives in Florida.  Thank the dear Lord I have sisters that will be there for her.  In our family that will be 3 surgeries for the start of 2016.  After that we need to plan some vacations.

Love you mom, we got this………………

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Lynne1437940979_love_valentines_day_11

Surgery again in our household, Lynne’s story


Yes, I’m having surgery tomorrow morning.  January has been a hell of a month for us.  I’ve taken take of my daughter now it’s my turn to take care of myself.

About 8 weeks ago, I started to experience pain in my back that traveled down into my right leg.  Didn’t think much of it, until it started to get worse with no relief.  I finally had to call my Dr.  A couple of years ago, I was experiencing lower back pain.  I was diagnosed with Degenerative Disc Disease‎.  I did physical therapy and it went away.  But now it is back.

First they tried me with 800mg of ibuprofen.  The pain just kept getting worse.  Then they gave me prednisone which is a steroid for 5 days.  Nothing.  After that I received muscle relaxers to help.  This was around Christmas time now.  I can honestly say, it ruined my Christmas.  I had a couple of mimosa’s in the morning trying to enjoy my Christmas morning with my family, but it is true you cannot mix booze with muscle relaxers.  Let’s just say, I worked so hard to have a beautiful Christmas for my family and it did not turn out that way.

Went back to my Dr. and now they had me go for an MRI.  At this point the pain was just ongoing.  Every moment of the day, it has been getting stronger and stronger.  I cannot sleep, and if I do I end up waking up around 2-3 in the morning with pain that I have to stay up.  Laying down makes it throb more.  When I had the MRI done, it was so painful.   I could not lay still, my back and leg kept going into spasms.  I had to just bite down on my lip and keep telling myself you can do this.  The whole time I was having this done, I kept thinking about my daughter and all the procedures she had to endure.  If she could go through the hell she went through, then I could do this.

Results from the MRI came in. I was on the phone with my Dr. and she said “normally I would have you come into my office to talk, there seems to be a mass on your spine”.  I really wasn’t sure I heard her correctly so I said to her, “are you saying that I might have the C word. (I couldn’t say the word).  She wanted me to see an Neural Surgeon.  I just sat there and cried, I felt like my whole world just ended.  About an hour after I got off the phone with my Dr., my phone rang and it was the surgeons office calling.  They wanted me to come in that day.  Now I was really scared.  Called my husband  and he was home before I could get myself together enough to be able to talk.  We went to the office and to our relief, it is not a mass.  I have 2 herniated disks that is hitting my sciatic nerve and the image she saw was my bone protruding out a bit.  We scheduled the surgery but it was going to be 3 weeks away.  So for the last 3 weeks I have been living with a pain I wouldn’t wish on anyone.  They have me on percocets to help with the pain, but it is really not touching it.  This is how bad the pain is…Dean and I were invited to go to the Patriots playoff game.  Great seats so there wouldn’t be that much walking.  At first I said no, I was afraid I wouldn’t be able to walk it, but then said the hell with it, I can do this.  Well, I only lasted till half time.  Thank God we had a hotel room close to the stadium.

So tomorrow hopefully I will be able to get rid of the pain I have been living with.  When we went to the hospital with Lauren I actually had to use a wheelchair, I could walk the hospital.  I am very nervous about having back surgery, but I have no choice at this point. I guess it’s Lauren time to step up and take care of her mom for a bit.

So to all my friends out there, if you haven’t heard from me in awhile, this is the reason why.  Just staying in and trying to find positions that try to make me comfortable.

Wish me luck

Lauren told me, “you got this mom”.

Love Lynne  1437940979_love_valentines_day_11