Update on Cian, please read


Little Cian McDonnell Lynch is four years old. He is battling a very rare illness that has no cure.
Email:hopeforcian@gmail.com
http://www.hopeforcian.com/

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Update from Lisa (Cians mother): Today was Cians first day back at pre-school. He was so excited going back.

“We are trying to make life as normal as possible for him while we wait for the liver biopsy, results and a final decision as to if Cian will definitely be put on the list for a double lung transplant in Boston. Cian is in the process of getting tests done before getting the biopsy to ensure he didn’t pick up any type of infection while in Boston Childrens Hospital recently. So far the tests have been clear. We should have dates for the biopsy very soon. Overall Cian continues to be a happy little boy full of fun despite all he is going through. He’s not able for much exercise or moving around as he gets very breathless and sick when he overexerts himself. We want to say a huge thank you to everybody that has supported Cian to date. The support is amazing. We are so grateful to you all 💜”

Since I have heard about Cian and his family, my heart aches for them.  I know the frustration of the waiting game.  Wondering if my child is going to live or die.  I can feel their pain.  When my daughter Lauren was in the hospital, first waiting to find out if she would be accepted to be placed on the transplant list, then after being accepted, waiting for a donor.

During my time in Boston Massachusetts, one day I needed to get out of the hospital.  I took a walk around outside, it started to rain.  I came across a cute little restaurant called Penguin Pizza.  When I entered the place, I felt so alone.  Everyone was with friends having a great time. So I took a seat at the bar (didn’t want to sit at a table alone), on that day, my time in Boston changed.  Everyone that worked there was so friendly, most of them were from Ireland, loved the accents.  Then I met  Pamela O Brien Carthy, she was the manager there.    I remember how Pam made me feel so welcome.  She knew I was new there, so Pam took the time to talk with me.  I told her about my daughter, and how I was living in the hospital with her.  Pam was very comforting and from that day on, I felt I had a friend in Boston.

Lauren and I started a fundraiser for expenses from her hospital room.  We order purple wrist bands to sell.  Pam and her crew jumped in and helped to sell them from her establishment.  One day my husband Dean and I stopped in and to our disbelief, the crew was all wearing the bands, then looking around so many of the customers were wearing the bands also.  They raised so much money for us, I could not believe it.

We have stayed in communications to this day.  That’s how I heard about Cian.

Please share this post.  Cian and his family need our help and prayers.  At this time he is back home in Ireland, waiting for test results.  I am praying he comes back to Boston soon, to receive his gift of life.  When that happens, I would love to make a trip to Children’s Hospital in Boston to be able to meet him and his family.  Also I would love to meet up with Pam again.

Please click on the link to learn more about this precious little boy.
http://www.hopeforcian.com/

Lynne  1437940979_love_valentines_day_11

Have you ever wanted to become a SUPER HERO ????????????????????


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   I remember from my childhood, when you heard the words, “SUPER HERO” you though of these characters.  Batman & Robin, WonderWomen, Superman and the rest of this bunch. I wanted to have super powers, who didn’t want to become a Super Hero.  I know that was only a dream.  How can Lynne Robitaille be a SUPER HERO?

Well, I made my dream come true.

I BECAME A SUPER HERO 

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“I AM A REGISTERED ORGAN DONOR”

ORGAN DONORS ARE HEROS

You to can become a SUPER HERO, register today.

http://www.donatelife.org

These are the latest statistics of people who are waiting for organs.

How many people are waiting for an organ transplant?

Currently, close to 124,000 men, women and children in the United States in need of a lifesaving transplant.
Largely due to the rarity of donation opportunities, only about 28,000 organs are transplanted each year.
As a result, 21 candidates die each day for lack of a donor.

I remember being in the hospital with my daughter, praying she would not fall into the last statistics.  Lauren was given a second chance of life from a SUPER HERO.  

Also I would like to mention, you can also be a living donor.

http://www.transplantliving.org/living-donation/being-a-living-donor/

Join me and become a SUPER HERO

Lynne  1437940979_love_valentines_day_11

American Heart Association Halloween 5K walk


Traci Heath, from the American Heart Association ask me to help spread the word on a very important cause.  Please pass this on, show your support.  Sounds like a fun day for yourself and the family.

Traci Heath
Director at American Heart Association

Please help me get the word out about this Halloween 5k / walk.  You can form a team, walk/run as an individual or with friends and family and bring the kids! Family oriented event on Halloween morning. Please wear your costumes! Face painting, games, Knight Productions​ DJ Entertainment and much more! Sponsors: Baystate Health / Health New England, Subway, Greylock Federal Credit Union, and WBRK!! Enjoy a fall foliage ride to the Berkshires on Halloween for this fun-filled event! Oct 31st @ BCC. http://www.berkshireheartwalk.org

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Click on link below for more information

http://heartwalk.kintera.org/faf/home/default.asp?ievent=1131488

Lynne   1437940979_love_valentines_day_11

This is how my day started


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6:30 this morning, my husband was leaving to go to work.  He was taking my car today, when he went outside to leave this is what he saw.  I woke up and looked at it and just started to cry.

We live in a wonderful neighborhood, when the cops came they told us this has been happening to Honda Accords a lot.  I could not believe all 4 tires and the car is just resting on two cinderblock.  I feel so violated that someone came on our property and touched my car.

We didn’t hear a thing.  If you notice they left all the lug nuts.  Don’t understand that one.  What is going on in this world? My husband took the day off from work, I felt bad for him.  He had a full day of meetings.

Just wanted to share, if you have a Honda Accord, make sure you have locks on your tires.  I didn’t, but will now.

Lynne

Information on Organ Donation


Are you an organ donor?

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This could be one of your most important decision in your life you could make.  I cannot think of a more beautiful tribute to your life, knowing if you could not be here in this world, you could help someone suffering, to live.

When I look at my daughter, there are times in my mind I try to picture the person who made the decision  to be an organ donor.  She saved Lauren’s life.  We still do not know who the person was yet, but feel confident someday we will.

I believe this is a subject that most people don’t want to think about.  Let’s face it, no one wants to think about their own death.  I know I don’t.  But, God forbid something was to happen to me.  It would be a privilege to know that I could help others after I am gone.  Take a moment to give this subject some though.  If you have any questions about becoming an organ donor, I have posts that explains everything you need to know.  Also you can go to  Donate life.

If you could take a moment to take this poll, Lauren I would appreciate it.

Thank you

 

Lynne 1437940979_love_valentines_day_11