Pope Francis speaks about Organ Donation


Organ Donation Called Ultimate Gift of Compassion

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TUESDAY, 29 SEPTEMBER 2015

To mark the visit of Pope Francis to the United States, NJ Sharing Network is reminding the public that most religions, including Catholicism, support organ and tissue donation. Pope Francis described the act of organ donation as “a testimony of love for our neighbor” when he met with the Transplant Committee for the Council of Europe, which gathered in Rome last year.
“As Pope Francis travels in the United States, we want to spread his poignant words about organ donation. At NJ Sharing Network, we know that donation is a generous, life-saving gift. We are grateful that Pope Francis has spoken so positively about the gift of life,” said Joe Roth, President and Chief Executive Officer of NJ Sharing Network.
Pope Francis is not the first pope to speak in favor of donation. Pope John Paul II said, “The Catholic Church is clear that, in itself organ donation is a good and meritorious thing. It’s a powerful expression of human solidarity. Such actions can help build a culture of life, a culture in which life is cherished.”
Not only does the Church accept organ, eye and tissue donation, it also recognizes donation as a great act of charity and love. Pope John Paul II also said, “The Catholic Church promotes the fact that there is a need for organ donors and that Christians should accept this as a challenge to their generosity and fraternal love. One of the most powerful ways for individuals to demonstrate love for their neighbor is by making the informed decision to be an organ donor.”
Nearly 5,000 people in New Jersey are waiting for a life-saving organ transplant. This miraculous task of providing life-saving organ transplants to the men, women and children on the transplant waiting list would not be possible without the selfless decision of those who register as organ and tissue donors. Registering as a donor makes a strong statement about the kind of person you are and want to be and relieves your family from the burden of having to make the decision for you during a time of trauma and loss. One organ and tissue donor can save and heal the lives of more than 50 people – a life-changing gift to the recipients, their family members and the community on a whole.
Registering as an organ and tissue donor shows an individual’s compassion for others, and can change lives forever.
You too can save lives. In honor of Pope Francis’s visit to the United States this September, register as an organ and tissue donor today

Strong words, from our Pope.

Lynne 1437940979_love_valentines_day_11

football season is here…..


My fun post.  Football season is here..  

                      My buddy Joe and I wearing our new customized Patriot’s jerseys.  We are Patriots fan’s so we thought we would join the team with our last names on them.  The numbers are special to us, they are not player’s numbers, they are our own.

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Football season to me means, good friends getting together and just letting loose for a couple of hours.  Hooting and hollering.  Sometimes you just need to get it out of your system.  It’s my release.

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Let’s have a fun and exciting season.

Now a dedication for my husband, Dean.  Oakland Raider’s fan for life.

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He will support my team when they play, so I support his team when they play.

DSCN2860yes that is me, we went to a Raider’s game in New Jersey, I hate to say this, but had a great time hanging out in the black hole. Raider fans know how to tailgate. OMG

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Seats were amazing, 5 rows up.  They were playing the Jet’s.  Not a Jet’s fan at all. So after a couple of beers, I had a great time.

LET MAKE SURE WE ALL HAVE A SAFE AND EXCITING FOOTBALL SEASON.

Leave a comment, just wondering who your favorite team is???

Every 10 minutes, a person is added onto the transplant list.


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Statistics
Although there have been advances in medical technology and donation, the demand for organ, eye and tissue donation still vastly exceeds the number of donors. For more information, read the summary below or create a detailed data report on the UNOS Web site.

More than 123,000 men, women and children currently need lifesaving organ transplants.Every 10 minutes another name is added to the national organ transplant waiting list.

  • Sadly, an average of 21 people die each day because the organs they need are not donated in time.In 2014, more than 8,500 deceased donors made possible approximately 24,000 organ transplants. In addition, there were nearly 6,000 transplants from living donors.
  • Nearly 48,000 sight-restoring corneal transplants were performed in the U.S. in 2014.
  • Each year, approximately 30,000 tissue donors save and heal lives.
  • More than 1 million tissue transplants are done each year and the surgical need for tissue has been steadily rising.
  • According to research, 98% of all adults have heard about organ donation and 86% have heard of tissue donation.
  • 90% of Americans say they support donation, but only 30% know the essential steps to take to be a donor.

Just a few fact’s that I think needed to be said again.

Lynne 1437940979_love_valentines_day_11

You can only donate your organs if:


You can only donate your organs if:
you express a wish to donate your organs while you are alive, or the person closest to you (next of kin) gives their permissions.

Your organs cannot be removed if you or your next of kin have not given permission.
Organ donations come from people whose death has been confirmed while on a ventilator in a hospital intensive care unit (donation after brain stem death) or from people whose heart has stopped beating (donation after circulatory death). In some cases, people can donate their organs if they die in a hospital emergency department or are pronounced dead on arrival at a hospital.

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Organs can only be removed from someone with consent. You can give consent by indicating that you want to be an organ donor if you die. The best way to do this is by joining the Organ Donor Register, as this makes it easier for medical staff to establish your wishes.
If it isn’t known whether you wanted to donate your organs in the event of your death, the person closest to you will be asked what they think you would have wanted and they can give consent to donation. That is why it is vital to let your family and friends know that you want to be an organ donor.
What is organ donation?

Organ donation is giving an organ to help someone who needs a transplant.  The major organs that can be donated include the:
heart
liver
lungs
kidneys
pancreas, eyes and skin.
Organ donation saves thousands of lives, and can also improve the quality of life for many others. Between April 1 2013 and March 31 2014, 3,569 people had their sight restored by donated corneas.

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Becoming an organ donor

The Organ Donor Register is a confidential database that contains the names and wishes of people who want to be organ donors. It helps doctors to understand and carry out your wishes.
If you want to be an organ donor, as well as joining the register, it’s important to tell your family so that they are prepared in case anything happens to you. Organ donation will be far easier and comforting for your family to accept if you have already discussed your wishes with them.
Many people gain a great deal of comfort from knowing that the death of a loved one has helped to save the life of another person.
Join the Organ Donor Register

http://www.donatelife.org

You can also sign up to the  Organ Donor Register when you
fill out a driver’s licence application form online.

Please take a moment to think about this subject.

Lynne 1437940979_love_valentines_day_11

Blogging 201 is here


Today’s assignment: consider what you want to accomplish with your blog. Write down three concrete goals.

Starting this post, I really didn’t have to think that long and hard about why I write my blog. My daughter had a heart transplant on December 30, 2013

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  •   Bringing  awareness  and education about organ donation.  

          Fact:  21 people die every day in the United States waiting for organs.  Together we can         lower that number by making that decision to become an organ donor.  We were blessed, Lauren did receive her heart, but unfortunately many will not.

  • To be able to reach out to more people so I can  use my site as a forum for helping promote events,  fundraiser and to  help support different causes.

           To name one            http://www.hopeforcian.com/12006146_1525023411121985_5928326806849911543_n

  • Double my number of followers

Lynne 1437940979_love_valentines_day_11

Have you ever wanted to become a SUPER HERO ????????????????????


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   I remember from my childhood, when you heard the words, “SUPER HERO” you though of these characters.  Batman & Robin, WonderWomen, Superman and the rest of this bunch. I wanted to have super powers, who didn’t want to become a Super Hero.  I know that was only a dream.  How can Lynne Robitaille be a SUPER HERO?

Well, I made my dream come true.

I BECAME A SUPER HERO 

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“I AM A REGISTERED ORGAN DONOR”

ORGAN DONORS ARE HEROS

You to can become a SUPER HERO, register today.

http://www.donatelife.org

These are the latest statistics of people who are waiting for organs.

How many people are waiting for an organ transplant?

Currently, close to 124,000 men, women and children in the United States in need of a lifesaving transplant.
Largely due to the rarity of donation opportunities, only about 28,000 organs are transplanted each year.
As a result, 21 candidates die each day for lack of a donor.

I remember being in the hospital with my daughter, praying she would not fall into the last statistics.  Lauren was given a second chance of life from a SUPER HERO.  

Also I would like to mention, you can also be a living donor.

http://www.transplantliving.org/living-donation/being-a-living-donor/

Join me and become a SUPER HERO

Lynne  1437940979_love_valentines_day_11

Make today a beautiful day


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The sun is rising.

  I took this picture when I was at the beach, a beautiful morning sunrise.

I am so blessed, that I had the opportunity to be able to watch this magical site.  It’s a new day.

When you start your day today, be thankful for everything and everyone you have in your life, there are no guarantee’s we have tomorrow.  Say a prayer for those are suffering.  Every morning I start my day with a prayer  for anyone who many be living in the hospital, that their gift of life will come to them today.  This poem was written by Suzy Kassem.

 Each day is born with a sunrise
and ends in a sunset, the same way we
open our eyes to see the light,
and close them to hear the dark.
You have no control over
how your story begins or ends.
But by now, you should know that
all things have an ending.
Every spark returns to darkness.
Every sound returns to silence.
And every flower returns to sleep
with the earth.
The journey of the sun
and moon is predictable.
But yours,
is your ultimate
ART.”
― Suzy Kassem

Today is Saturday, the weekend.  To some people it’s called “finally the weekend is here”, to others it is just another day.  The only thing you have control of, is your approach to the day.

Lynne 1437940979_love_valentines_day_11

Hope for Cian, please take a moment to read


Awhile back I posted the story about Cian McDonnell-Lynch.  He is now in Boston.  Please view the news video.   My heart breaks for him and his family.  Like his mother said “where there’s life, there is hope”.

With everything that is going on in the world, let’s not forget to help people who truly need our support.  Please pass this on, every little donation or prayer will help.

Cian is just four years old.
He’s been given until Christmas to live.
His family, saying they refuse to give up, has traveled to Boston Children’s Hospital in the hopes that one of the world’s premiere hospitals can help keep him alive.
Cian has been fighting an often deadly bone marrow disorder called Dyskeratosis Congenita since birth.
“It’s a very rare disease,” his mother, Lisa McDonnell, told WBZ-TV Tuesday.
“It affects one in a million. And Cian is actually at the more severe end of the syndrome.”
Cian McDonnell-Lynch and his family in Boston (WBZ-TV)
The disease left Cian permanently blind at the age of one. He did get a successful bone marrow transplant two years ago, but the disease is now affecting his lungs with another rare and deadly disorder, microscopic pulmonary AVMS.
“They’re actually microscopic blood vessels; they’re malformations,” his mother explained. “And the oxygenated blood is not getting around to his whole body.”
“We were told today that it’s actually progressing very quick, so we’re just really really hoping that he’ll be accepted onto the transplant list here in Boston.”
Cian has been given only a few months to live.
A double-lung transplant would likely save his life, but he was rejected for one at a hospital in London.
“He was the first child that they’ve seen with this condition,” Lisa said. “It’s just so rare. I think they’re just afraid of what the outcome is going to be. His quality of life afterwards. But we just can’t give up on him.”

So Lisa and Cian’s father and big sister have come to Boston Children’s Hospital as their last hope. The hospital has begun running tests on Cian to determine if his body can handle the transplant.
But if it can, the family’s Irish insurance policy will not pay for the surgery here in the sates.
Between the procedure and recovery time, the family will need more than $1 million out-of-pocket to keep their son alive.
That heart-wrenching story has touched off a massive fundraising effort in Ireland that has spread here to the U.S. and as far west as Australia. Well more than 5,000 people around the world have donated close to $200,000 already.
But there’s a long way to go.
“It’s just so heartwarming to think that everybody cares so much about him,” Lisa said. “Everybody is really fighting in our corner, in his corner, and he’s going to get the best possible chance.”
“Where there’s life, there’s hope.”
If you want to donate, please click here: http://www.gofundme.com/hopeforcian.
You can also learn more about Cian’s story at http://www.hopeforcian.com, and on his Facebook page, “Hope for Cian.”

Lynne    1437940979_love_valentines_day_11

Are you Eligble for a heart transplant ?


In my writing I want to be able to educate and give true experiences on being listed for a heart transplant.  In my daughter Lauren’s case she was in CHF.

What is congestive heart failure (CHF)?

Heart failure describes the inability or failure of the heart to adequately meet the needs of organs and tissues for oxygen and nutrients. This decrease in cardiac output, the amount of blood that the heart pumps, is not adequate to circulate the blood returning to the heart from the body and lungs, causing fluid (mainly water) to leak from capillary blood vessels. This leads to the symptoms that may include shortness of breath, weakness, and swelling.

Understanding blood flow in the heart and body

The right side of the heart pumps blood to the lungs while the left side pumps blood to the rest of the body. Blood from the body enters the right atrium though the vena cava. It then flows into the right ventricle where it is pumped to the lungs through the pulmonary artery. In the lungs, oxygen is loaded onto red blood cells and returns to the left atrium of the heart via the pulmonary artery. Blood then flows into the left ventricle where it is pumped to the organs and tissues of the body. Oxygen is downloaded from red blood cells while carbon dioxide, a waste product of metabolism, is added to be removed in the lungs. Blood then returns to the right atrium to start the cycle again.

Now it’s time for the truth. I am not going to say I am an expert, but we lived through it, and I am writing on our own experience.

We had a Dr.’s appointment with a Heart Failure Specialist in Boston Ma.  After a quick exam, we were  told
she was admitting Lauren right that day.

During that time, to be honest I had no clue what in the world was going on.  After a couple of days, a team of Dr.’s came in and introduced themselves  to us, they were the Heart Transplant Team.

They told us that they felt Lauren is at the point where she would need a heart transplant.  Her heart was getting weaker.

Trust me, it is nothing like in the movies.  If you need a transplant, you are not just put on the list.  You have to be accepted, and this is done by a committee within the hospital.  So many factors have to be considered.  It was a 4 day evaluation.  Number 1 factor was Lauren’s general health.  Next it had to be approved by your insurance, then they had to evaluate Lauren’s support system.   As you are going through this process, I remember praying that Lauren would be a candidate for heart transplant.  At the hospital where we were, the transplant team would have weekly meeting on Wednesdays.  In the meeting was the Social Worker, Transplant Team Doctors, and the surgeon.  They decide if you will be placed on the list.  The day was March 13, 2013 when the team came into Lauren’s room and said she has been placed on the Heart Transplant List as a 1A.  My thought was my daughter is going to live.

Not everyone is accepted to be placed on the donor organ list

Below is the evaluation process…..

Heart Transplant Evaluation

Patients who may be helped by a heart transplant undergo an extensive evaluation of their heart disease and general health by the Heart Transplant Team. The evaluation period is a time of learning for patients and their families. During the evaluation, the heart transplant nurse collects the patient evaluation information and presents it to the heart transplant team for discussion at a weekly meeting. The evaluation process provides information for the team to determine if the patient’s condition is severe enough for a heart transplant and if transplant is a valid option.

Typically, the evaluation includes two days of outpatient testing and interviews. Patients who are very sick may be evaluated while they are in the hospital. The evaluation includes assessments of both the cardiovascular system and the body as a whole.

Cardiovascular Tests

Cardiovascular systemassessments includes the following tests:

Chest X-ray and/or CT scan: Pictures of the heart and lungs
Electrocardiogram (EKG): Measures the electrical activity of the heart taken through patches applied to the skin
Echocardiogram: An ultrasound of the heart that reveals size and heart muscle function, as well as the valve function
Exercise stress test: Measures how well the heart is supplying oxygen to the body. Patients walk on a treadmill while their heart and oxygen levels are monitored
Right heart catheterization: Measures the pressure in the heart and lungs. A catheter for monitoring pressure is passed through a vein in the groin or neck and into the heart
General Health Tests

General health information includes a history of immunizations, medical information and dental health, as well as the following tests:

Pulmonary function test (PFT): Determines air volume in the lungs and identifies lung conditions that might be a problem after transplant
TB skin test: Identifies exposure to tuberculosis
Blood tests: Identifies blood type; tissue type; varicella zoster, hepatitis (A, B and C), toxoplasmosis, cytomegalovirus (CMV), and HIV; tests immune system, kidney and liver function and thyroid function.
Cancer screening tests: Determine if cancer is present. May include a colonoscopy and/or prostate specific antigen (PSA) for men, and a mammogram and/or Pap smear for women
Urinalysis and 24-hour urine testing
Peripheral vascular/carotid artery studies: Measure blood flow to the brain and legs, and identify any blockages in the blood vessels
Abdominal ultrasound: Checks for masses, cysts and aneurysms in the abdominal organs and blood vessels
During the evaluation, certain conditions may be identified that may prompt additional testing and consultations to further determine transplant candidacy. These concerns and appropriate treatments are discussed with patients and family members.

If the heart transplant team decides that transplant is the best option and patients agree, patients are “listed for transplant.”

Lynne 1437940979_love_valentines_day_11