So tomorrow we are venturing off to Brigham & Women’s Hospital in Boston Ma. for Lauren’s yearly biopsy. It will be a two day event. On Thursday first appointment is her echo, then a clinic visit and finally a stress test. Day two – heart biopsy. Being a two day hospital visit, we are staying over night at a local hotel. During the visit Lauren will not be in the hospital. Just day appointments. So after her appointments we plan on visiting some of the wonderful people that helped us during our time there. Like seeing old friends.
Wish us well, that everything goes well. Let’s pray for a negative test result, meaning no rejection.
News from Boston
Lauren had her biopsy, a couple of weeks a go. As I said, there was no rejection. They wanted Lauren to have her blood work done again in week to recheck her taccrolimus levels. They were a little low, so they upped her dosage for a week and then have it rechecked.
Tacrolimus is an immunosuppressive drug used mainly after allogeneic organ transplant to reduce the activity of the patient’s immune system and to lower the risk of organ rejection
Friday Lauren’s Dr. from Boston called and said, they have to make another adjustment. So now they lower it a bit, and also lowered her potassium by one capsule 750mg. Lauren has been taking 5 a day so now 4 a day. Tacrolimus can interact with your kidneys. So Lauren’s kidney levels were elevated. They also adjusted her torsemide from 100 mgs. twice a day to 50 mgs twice a day
Torsemide belongs to the group of medicines called loop diuretics. Torsemide is given to help reduce the amount of water in the body in certain conditions, such as congestive heart failure, severe liver disease (cirrhosis), or kidney disease. It works by acting on the kidneys to increase the flow of urine.
These are all the meds Lauren has to take every day. I sometimes feel like small pharmacy here.
Since the transplant, I have learned the lesson that medicine is a science. It takes a lot of adjusting. Factors can be the time she takes them, food Lauren eats, exercise and most important fluids she drinks.
Lauren takes a total of 26 pills through the day. We fill her pill boxes once a week so everything is organized and ready for the day.
We have a new phrase around here ‘It’s that time of the month”, meaning refill time.
WELL, THE DR. CALLED
NO REJECTION !!!!!!!!!!!!!!!!!
This is how I feel right now. Calm with blue skies.
I just want to say “thank you” to everyone that was sending us good wishes.
Next biopsy in 3 months.
Yesterday, Lauren had her heart biopsy. Off to Boston. Her last biopsy was 3 months ago all good. Lauren had her heart transplant on Dec. 30, 2013. Since the transplant she has had 2 slight rejections, the dr.’s told us that is normal. Well, it might be normal to have a slight rejection, those are the words you do not want to hear. They needed to adjust her medication to correct rejection. The rejections were at the beginning of her journey after transplant, we haven’t had one in a while. Thank God.
If you read my last post, it explains the biopsy process. When a body receives a new organ through transplant it will always see it as a foreign organ. That is why a recipient must always take rejection medication every day.
So anyway, it was a long day yesterday for Lauren. Biopsy, echo, then a visit to the clinic to talk with the dr. From what they saw everything looks good. Her pressures where a little high, but they always have been. After the biopsy, they send it to the lab and check for rejection. That process takes 24 hours. So, by the end of the day we will receive a phone call with the news. Please, say a prayer…no rejection.