This morning, Cian’s mother Lisa wrote a message of thanks and love

“I want to thank everyone for the messages of support during this difficult time. I haven’t read most of them yet or answered you all but thank you. Donal, Chloe and I are completely devastated by the loss of our beautiful little Cian. I am just so honoured to be called Cians Mammy. He thought me so much and definitely made me a stronger and better person. He made alot of people better people. In a lifetime no one would endure what he did in four short years yet he always had a beautiful smile on his face. I love my boy so much. I can’t imagine what is ahead and life without him. No parent should ever have to endure the heartache of losing a child. I can’t describe this awful pain. I’ve never felt pain like it before. I’m going to try to be strong for Chloe and Donal and I know Cian will help us too. Our house was always full of chat and fun because of Cian. Peppa Pig was always on. He bossed me around the place and I loved it. He always told me he loved me. I’ll miss his lovely big hugs and kisses. I’ll miss our busy life. Anybody who met Cian or heard his story were touched by him and loved him and his beautiful personality. I am so proud of Cian. Last night hundreds of people gathered outside our house with candles and sent lanterns into the sky. They even sang one of Cians favourite songs “Twinkle Twinkle Little Star”. It was so beautiful.
Cian was always such a special little boy, now he’s a beautiful angel.
I hope you are happy little man wherever you are and I promise to keep your memory alive.  I know I’ll see you again.   Thank you for everything.”

          I love you so much forever. From your Mammy x

My message to a mother who lost her little man, who never received his transplant

Lisa,  I cannot even imagine the pain you have within you at this time.  Your son Cian, touched my heart following his journey.  The love that the world showed, with all their support in helping  Cian in achieving the funds to be eligible to be able to place on the double lung transplant list in Boston.  I have many times, wrote about Cian on my site to help get his story out.  Many of my followers, sent messages of hope and prayers for your son.  Cian will always be in our hearts, and never forgotten.  I showed my husband yesterday the post I wrote.  As he was reading it, tears were rolling down his face.  He told me, he cannot imagine the pain a family must feel in losing a child.

I truly feel that, Cian’s journey should never be forgotten.  My daughter Lauren was placed on the heart transplant list on March 13, 2013.  She received her gift of life on December 30, 2013.  Just as Cian had a very rare disease, my daughter Lauren was also diagnosed with a very rare muscular disease called Laing Distal Myopathy.  We were told that, there are only five other people in the world with this disease also.   And  Lauren also has Scoliosis.  When she admitted into the hospital, Brigham and Women’s in Boston Ma., she was in heart failure at the time, that is when they brought up a transplant.

I truly feel people need to be educated about transplantation.  If you need one, you are not automatically place on the list, like the movies perceive.  So much is involved in the process of being accepted.  We were very close that Lauren was not going to be placed.  I can remember many nights praying that Lauren will be given the chance for a second life.

When I think of all the thousands of people who helped Cian raise the funds he needed, to come back to Boston to be able to be placed on the transplant list, it is very humbling.  My feelings, I believe our world needs to change.  If you have insurance, I find it unbelievable that the hospital in the USA wouldn’t accept it.  I know this will not bring Cian back, but I feel this needs to be addressed.

From one mother to another, sending prayers to your family from ours

Love Lynne  

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