News from Boston
Lauren had her biopsy, a couple of weeks a go. As I said, there was no rejection. They wanted Lauren to have her blood work done again in week to recheck her taccrolimus levels. They were a little low, so they upped her dosage for a week and then have it rechecked.
Tacrolimus
Drug
Tacrolimus is an immunosuppressive drug used mainly after allogeneic organ transplant to reduce the activity of the patient’s immune system and to lower the risk of organ rejection
Friday Lauren’s Dr. from Boston called and said, they have to make another adjustment. So now they lower it a bit, and also lowered her potassium by one capsule 750mg. Lauren has been taking 5 a day so now 4 a day. Tacrolimus can interact with your kidneys. So Lauren’s kidney levels were elevated. They also adjusted her torsemide from 100 mgs. twice a day to 50 mgs twice a day
Torsemide
Torsemide belongs to the group of medicines called loop diuretics. Torsemide is given to help reduce the amount of water in the body in certain conditions, such as congestive heart failure, severe liver disease (cirrhosis), or kidney disease. It works by acting on the kidneys to increase the flow of urine.
These are all the meds Lauren has to take every day. I sometimes feel like small pharmacy here.
Since the transplant, I have learned the lesson that medicine is a science. It takes a lot of adjusting. Factors can be the time she takes them, food Lauren eats, exercise and most important fluids she drinks.
Lauren takes a total of 26 pills through the day. We fill her pill boxes once a week so everything is organized and ready for the day.
We have a new phrase around here ‘It’s that time of the month”, meaning refill time.
Lynne
[…] A update on Lauren’s results from her Biopsy. […]
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Would it be possible to fill the pill containers on a weekly basis? That is how i handle refilling my pill containers, every Saturday. Mostly chose that day because of the way my pill holders came back when we bought the containers years ago. I know what day of the week it is by looking at my pill holder for the day! (I’m kinda scatter brained these day, unfortunately)
Hope everything keeps going all right with your new organ!
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We do fill them on a weekly basis, to pull that bag of pills out it is overwhelming most of the time. Just wondering, why do you take a lot of meds?
Lynne
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Oh my. I thought I took a lot of meds. I fill mine once a week. I also feel like I’m always going to the pharmacy and picking up refills. It costs an arm and a leg. I can’t even begin to imagine what you and your daughter go through with this. I recognize it is a small price to pay for her to have a functioning heart and to be here to share life with you. Thankful you have those pills!!
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Oh my. I thought I took a lot of meds. I fill mine once a week. I also feel like I’m always going to the pharmacy and picking up refills. It costs an arm and a leg. I can’t even begin to imagine what you and your daughter go through with this. I recognize it is a small price to pay for her to have a functioning heart and to be here to share life with you. Thankful you have those pills!!
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